Hello
I've just been diagnosed with invasive ductal cancer grade 3 triple negative I'm so scared is anyone going through the same?
Hi Harleybear. So glad you now have everything done that can be done. Did you finally get any reconstruction at all ?
Hi V good to hear from you . Sadly I am considered less important because I am not the perfect weight and size . So no reconstruction. I struggle so much with this mastectomy Still can’t look at it or touch it. It’s all very unfair and makes me feel so worthless. How are you doing xx
Wish I could give you a big hug and let you know that you are special no matter what your size, weight etc. I think that the support people at Macmillan can help you. A hard time for sure and it will take time and patience to get through it. Even small steps will help you on this journey to acceptance. Hugs to you.
Barbara
Barbara
Thanks for your kind words . I just feel that the way I feel about the mastectomy doesn’t seem to matter because I don’t have the perfect BMI. Hate the way it feels , hate the prosthetic boob . Hate the bras I have to wear now as most of my clothes are now not wearable as the bras are too high and can be seen . I have a few to the neck t shirts I can wear but little else . Xx
It does seem very unfair. I was told to lose weight if I wanted DIEP but I decided against that option as I was worried about possibly ending up in intensive care, so took what to me was an easier sugical route (though implant had to be done twice due to haematoma). I know I would have felt the same as you. This is funny though - in this tremendously hot weather we've been having the implant gets red hot !!! Hope you have been going to the beach. You are not worthless. I wouldn't touch anything for ages. It does take time to accept.
My health authority only offers DIEP so I didn’t get given the option for an implant which would have suited me fine . I had my mastectomy in January and am still avoiding it all . I think I would have felt better if I’d had a double mastectomy aS at least I would be symmetrical. This has impacted me on so many levels . How are things with you ? All ok ? Xx
Hello, I don’t understand the health system you have so forgive me me for probably asking a dumb question. Why can’t you go to a plastic surgeon and discuss all the options that are available? I live in Florida and am on Medicare with a supplement and can go where I want. I wish that women would not be limited to certain procedures. Makes me so angry.
Barbara
We are bound by using the surgeons in our health authority . If I had private medical insurance I could choose who I go to but sadly I don’t . Xx
I understand now. Still doesn’t seem fair as I feel everyone should be entitled to all the options. We have some health plans here where you have to see physicians in the network so they don’t have access to some physicians. Thank you for educating me.
Hot and humid here in Florida. Got my sunscreen on and not exposing myself to the sun.
Bye
Barbara
Barbara
Hi, I too was refused on grounds of BMI. I initially thought I would get reduction on one side and reconstruction on the other. I thought this might be the one positive but oh no. The plastic surgeon did say that if my BMI improved I could have it later.But with weight gaining aromatic (exemestane) that would be a distant dream. I did however manage to get the double mastectomy arguing that without it I would be so lopsided I would be needing surgery for hips etc. I also needed the support of my MP and wrote to the Trust chief executive. I am glad I had the double and rarely use the prothesis - mainly for swimming. It does get me down though especially as I now have fat around my middle which has been mistaken for droopy boobs. I am in my early 70s so it isn't as important for me as younger people but...
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