just diagnosed and so scared

Rhiwbina 

Are you ok we are all worried about you ? 

Hi everyone, I am doing okay. Taking my prescribed meds and resting. Drinking loads of water. But I honestly don't feel to bad. Can feel the energy there steroids are giving me, had no nausea or sickness. Have got alittle  taste in my mouth, but I am using my mouthwash and boiled sweets help. Has not stopped me eating ha ha. Well done mel28, how are you feeling today claud and key. Hope your appointment went well harleybear. I am to worried about rhiwbina, hope your okay. Love and hugs to everyone xxx

Hi Shaz, so glad you are doing ok......take it easy as when the steroids wear off you you might get a bit of tiredness set in so yu need all your energy....yes the boiled sweets do help with the mouth.

Hope too that your appointment went well Harleybear....hope you don't have to wait too long for the results...that's the worst bit the waiting 

Thinking of you all.....

Lots of hugs.....xxxx

1. Morning all . Hope you are all doing ok .  CT scan done yesterday now the long wait for results .   I am feeling really rough today , I appear to have a cold on top of the chemo side affects .  Anyone else got a cold while having chemo ? Should I be worried , can’t get up today head feels  like it will explode .
   good to hear you have turned a corner Mel , on the road to recovery now .  How many cycles of chemo are you due .  How are the side affects.   Shaz how are your side effects today ? Claud are you continuing to improve ? Jayne are you ok ? Key how you doing this morning ? V are you ok ? Anyone I have missed apologies my head fuzzy .   Have a great day ladies , I don’t think I can get up . Xxx

Hey thanks , can’t do much else today feel awful . How you doing ? Xx

Hey so lovely to here a positive outcome and delighted you got to ring the bell . You must join us on our paint the town red night after we have all done with this gruelling treatment.    I feel like I have never ending misery ahead of me right now but so want to believe I can beat this .  I have huge stresses in my family life right now too and I am worried that this will impact on my recovery . Why can’t my lot get their heads out of the sand and realise this is serious !!!   This disease changes your view of the world for sure .  Stay well xxx

Keep going my lovely.....I know the stresses in life don't help at all and it is very difficult for partners relatives to know what we experience when we go through this horrific journey , how do you explain when we don't even understand ourselves what our poor bodies are going through and how we cope with it mentally as well as physically. ...my other half is brilliant (been together 38yrs), but even he could not know what I was feeling and had to take himself off for an hour or so here and there just to get away from it, which I could understand............I am not a brave lady, and I felt detached, but overwhelmed at the same time when I started out.....I didn't even seek treatment or tell my family for quite a while in the beginning when I knew there was a problem..... which looking back was not the right thing to do, but like us all i was scared. I obviously keep my fingers crossed everyday day for no recurrence, but hey like in my other post I am still here to tell the tale.....just had my booster jab.....and looking forward to another Christmas that I didn't think I would see.....and just stressing about what Christmas presents to get.... ...after all the stress of waiting for results and all the mountain of treatments, if that is all I have to worry about, wow I am so lucky....I do have a lot of aches and pains and neuropathy (from the chemo)   but I cope with that.....so...sorry to go on a bit, but......keep going.....it will end....you can do it....the nightmare of feeling so dreadful will stop.    I still go over it all in my mind and talk it over with my other half even though it's nearly 2 years for me,  as it takes a while to assimilate what the hell happened!!!!!....

Take care everyone.....thinking of you, 

Love & hugs.......xxxx

Hi Harleybear

Sorry to hear that you are feeling rotten today. Could you talk to your family and tell them how tough you are finding things and that you really need their support to help you get through treatment

Hope you’ll feel better soon

Best wishes

Daisy53 xx

Bad, bad 10 days , finally  rang  Velindre treatment line Friday morning. Had a terrible time with fatigue since Monday last week . They admitted me to assessment unit got a blood clot , I'm still alive didn't feel like it Friday . Told them I'm done no more , so got a 1 in 5 chance of cancer recurrence . 1 in 10 if I have 2 more chemotherapy cycle's. Feel I'm letting my family down if I don't do it. Lovely Nurse Practitioner talked me down from the cliff , well digitalis clinic in reality, which was where my mind was going. Got to inject myself every day for 6 month's. Radiologist thinks that clot will disperse before it hits my large veins and heart, well that's a bit dramatic they think it will be fine. So how will I look my grandchildren in the face 1 or 2 years from now if I pull the plug on treatment?  Today Sunday feeling a bit better , done my first anti clot injection myself got to step up it's my fight no-one elses it was easy and painless 179 left to do.  Thinking about you all and the difficulties of this treatment.  Never before have I understood the harsh treatments that cancer patients go through.  I'm feeling that with two more to do I will try to keep going. One day at a time.  Bless you all for kind wishes and hugs although I had no strength to respond to you all I read every wish and helpful comment you left me . You are All truly the most supportive and inspirational People I have met along with my family and friends at work X I  Will try and be more active this coming week so I can support you like you supported and carried me through X 

Jayne X 

Hey Jayne , don’t feel bad about not responding we are all just glad you are ok.   Whatever decision you make it has to be the right one for you, you are the one that has to do this.   If you do decide to carry on can the strength be reduced to make it more manageable.   The next one will be the penultimate one as well so you are nearly there.  Make the decision that is the right one for you.   You are so brave doing the injections I can’t do the ones I have to do for 7 days. I get it almost there then pass it over to my other half.    Take it easy , rest , recover see how you feel about it all in a day or so there is no rush to decide now .   

I have an awful cold and wondered if I should ring oncology for advice.   Can’t tell what are side effects and what is the cold

big hugs to you we are all here for each other, every day is a step closer to party night xxxx