Setting this up a bit early....and I will ask Admin to ‘sticky’ it
Yes good new, kelstar9, hopefully the new plan eases the reactions.
I showed up for my day 1 of chemo and it was rescheduled for tomorrow. Bummer, I was all set, I wish they would of called first. At least I had waited to take some of my meds. Hopefully, this is a one time occurrence on their part.
I’m going to try and get to bed early, my new appointment is early for the nurses education session and I didn’t sleep well. I kept thinking I was forgetting something.
Glad you’ve got a plan and no, you’re not mad, we all want to do everything we can to prevent recurrence. Here’s hoping they can do what you want and they obviously will be extra vigilant because of your previous reaction. Good luck with the next chemo session.
Wishing you all peace and calm in the storm...with a helping of laughter and joy to bring healing ️
That is disappointing you would have been mentally geared up for it, hoping all goes to plan this time
Wishing you all peace and calm in the storm...with a helping of laughter and joy to bring healing ️
Thank you so much for your reassurance, I feel better this third week I am due to have the third Chemo session tomorrow evening. The Oncologists have changed back my antisickness to domperosone not surenof spelling as writing thisn late at night, so hopefully I will not have the reaction again. I feel as though I have been traumatised.
I really cannot accept being so unwell, I cant wait for all this to be over...then I have to have radiation sessions.
As my Chemo nurse said baby steps...breathe
Sorry to hear you’ve had a rough time I can’t find your previous post but really hope they get you sorted with meds to help you feel better. It’s hard enough having to get chemo without feeling traumatised through it. I’m having my first chemo tomorrow (Wednesday) so will be praying for everyone this week that it’s the best it can be. Sending gentle hugs and positive healing thoughts. Remember the chemo is killing the cancer and healing you as well even though it might not feel like it sometimes. Baby steps, day at a time.
Wishing you all peace and calm in the storm...with a helping of laughter and joy to bring healing ️
Hi
So pleased that you finally know what is happening. You really shouldn’t have had to wait so long though.
I am sure my initial reaction would have been to stop all treatment but you are right that we do have to do all we can to prevent a recurrence. I am sure most of us would make the same decision as you.
Hope that the next treatment is successful and you don’t have any adverse reaction. I am sure you will be very nervous.
I start Paclitaxel in 2 weeks. Am dreading the incredibly long day and after I read what happened to you I am very concerned about any reaction. I did raise this with my oncologist and my nurses but they were quite relaxed about it all. I am certainly not!!
Fingers crossed for you and do let us know how it goes x
Thanks I’m a little bit apprehensive as it’s not till 2pm but will go for a walk and try and keep calm in the morning.
Wishing you all peace and calm in the storm...with a helping of laughter and joy to bring healing ️
Yay! First chemo done. It was a long 8 hour day. I barely slept last night maybe 2 hours. Then when I woke up my breast with the cancer, my upper chest and my face were all red and flushed. The BCN said it’s probably from the steroids. My breast is still red but the rest has gone back to normal. If it happens again I’ll call my MO tomorrow. My last infusion my vein got inflared. So they stopped it 2x and flushed it then slowed it down. With 3 minutes left, they said they’ll just combine the saline with carboplatin or they’d have to make a new IV. It worked! I’m tired and time will tell about my SE.
good luck tomorrow Dclem4.
well done getting through your first session, although sounds fairly eventful! Keep a check on the flushing and definitely ring your MO if it doesn’t go down. My face always flushes but when my neck did it was a mild allergic reaction. That was a different chemo drug (pertuzamab) to what you have had though. Hope you manage to catch up on some sleep and the SE are not too bad for you! Fingers crossed!
Dclem4Thinking of you today and good luck for 2pm! Wishing you minimal SE. I do hope you managed to get some sleep.
I think you’re back in today too. Thinking of you and wishing you good luck & a much easier session than the last one. I have my consultant appointment today to hopefully find out why my legs swelled after my first EC & how to prevent it next time. Really do not want that happening again!
PatsyP2 & Hollythecat I hope energy levels are on the up! Day 9 (never sure if the day of treatment counts as Day 1) and feeling more like myself this morning touch wood.
Hoping everyone else going through this is doing as well as they can. Sending hugs xx
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