Anyone on here have it ? I’m having lumpectomy and.nipple removal next week , 18mm lump on left , also gave some lymph nodes removed fir biopsies! Never heard of lobular breast cancer ! I’m 70 yrs young !!
Hi.really sorry to hear that. I was diagnosed last week with the same. I’m 70 in January. I have an MRI and another ultrasound next week then if all goes well will be having partial breast removal and re construction shortly after. It’s horrid isn’t it to get it th hi is late in life. However I am upbeat and positive. Hope you are getting plenty of support and the best of luck with your journey. Love and hugs. Lizzy xxxx
hi Lizzy , yes it’s quite a shock I was called back after they picked it up on routine mammogram! I too am very positive and getting loads of encouragement from friends, family and the nurses and oncologist !! Can’t wait to have the op now next week and then start my recovery journey , lots of love , keep in touch , Xxx
Hi Lizzy yes radiotherapy then hormone therapy and some other medication. Can’t remember what they said , I’m going to jot it all down from now on , so much Information! But really glad they are telling me everything I think it’s made me feel more positive xxx
I was diagnosed with lobular December 2020. I had a single mastectomy as the lump was 5cm and apparently too big to just remove. I then had chemo and radiotherapy. Since then I've been on Letrozole, Abemaciclib and am now on Capecitabine. I think it takes a while to find the right treatment for this particular type but I am still carrying on 3 years down the line. Good luck. If you have any questions just ask x
Hi Lolly , how are you doing ? Ok I hope ? what are the , medications you are now taking for is it hormone therapy ? I was told I will be on hormone therapy for at least 5 years after surgery ? If so are there any side affects to look out for ? Xx
Hi - I was diagnosed with lobular breast cancer last November.I had a single mastectomy in February and have just finished chemo as it had spread to my lymph nodes.Am about to start 3 weeks of radiotherapy and then up to 10 years of hormone treatment starting with tamoxifen as I am Pre menopausal.Mine was also picked up on routine mammogram.I had no symptoms.Good luck with your op and treatment.xx
Hi Bordeaux had the same opp 5 weeks ago lucky hadn’t spread on hormone treatment letrozole for 3 weeks now with no side effects and having radiotherapy in 3 weeks then an infusion ? every 6 months to protect my bones .. make sure your doing your exercises to stop stiffness, so far feeling well im 74 and staying positive good luck and hugs x
Such a lot of people affected. I had an Onco appt on Friday. I'm on Tamoxifen, started on Letrozole in Feb but it made my knee sooo painful. I'm going to stay Bisphosphonates for 3 yrs. Funny how they suddenly added that one in. The first Onco completely ignored the fact I have osteoporosis. Got it changed at all he 2nd app. We have to be our own advocates.
I also asked about going on holiday and the risk of blood clots. He suggested having a Tamoxifen holiday, 5 days before and for 5 days afterwards. It can be a bit ad-hoc getting all the info. One of my friends got a blood clot after travelling from Japan which included a long coach trip. Need to keep the legs moving on these journeys. I'm so fidgety not difficult for me. Xxx
I'm doing ok thanks. Hope you are too. The medication I am on now is Capecitabine which is a chemo tablet. Letrozole and Abemaciclib didn't work for me but that's not to say they won't work for you. Everyone is different. Letrozole made my joints stiff but I was mainly ok on Abemaciclib. The worst thing for me on Capecitabine is that my feet get very dry and sore and as I walk a lot that's a pain. I do moisturise every night though which helps
Whatever drug you go on I hope ig works for you but if not , remember there are lots of others to try.
