Paclitaxel and 3 weekly trastuzumab

Jude, I have been wondering how you are. Have you finished with treatments now.  I finished last week and feel I can now look forward to a holiday after this very strange year. I must admit the time has gone quite quickly. It was weird to say goodbye to the lovely nurses and to say as nice as they are I hope to not have to see them again. If you weren't at home you were at the hospital with treatments and appointments. It was definitely a home from home. Anyway I hope all is good with you and it would be lovely to hear from you to catch up. Take care. Luv lesley xxx

Thank you so much Lesley, I hope you are doing well x

I'm not sure what the week  without  treatment was about, at the Initial meeting specialist said 12 weeks of paclitaxel then when mum went for her pre assessment  they said it will be once a week for 3 weeks a week of for 12 weeks :s not really sure.

I think mum is expecting  the tiredness  as this seems the common thing most people of mentioned, she has decided not to cold cap, I'm just wondering will she definitely  lose her hair?

I've also heard this schedule  is not as harsh, is that correct? 

Please stay in touch x

Jodie

Paitaxel is definitely not as harsh as the some of the other treatments that I have read about. Everyone reacts so differently . Many find cold capping hard but I found it easy and so glad that I did it, but your mum might be lucky and keep her hair, you just never know for sure . I had long hair and cut it short before starting treatment, I just didn't want long hair falling out everywhere.I had a few clumps come out mainly above each year but mostly it came out when I combed it and went very thin. I also bought some satin pillowcases which were better than cotton. The hair didn't drag on the pillowcase when turning my head.

Anyway i hope all goes well for your mum tomorrow.

Lesley xxx

Thank you , truly inspiring  anyone fighting this battle. Did you follow your treatment with radiotherapy.  Can I ask in 12 weekly  how many cycles is that classed as? Sorry about all questions I feel like I spend my day asking everyone  questions all the time. I ask more than my mum , she is just a get in with it person  sadly my anxiety  is through the roof without the answers x

Treatment was in groups of 3weeks so 12 weeks was 4cycles. I had herceptin once every 3 weeks for 6 months as I had HER2 protein. I had to carry on with this after chemo had finished for another 2 infusions. Radiotherepy was given a few weeks after chemo finished for 5 days.  Hope that helps. Try not to worry, your mum is in good hands and they will look after her. Let me know how she gets on. Xxx

Mum is having herceptin too once every 3 weeks for a year as she us HER2 positive too. Thank you so much for replying you have really helped. I hope you are enow on the road to recovery,  take and keep in touch x

Just ask if there is anything I can help with. Take care and best wishes to your mum -  and you of course. Xxx

Hi Lesley

lovely to hear from you x

I’ve just returned from a two week holiday in Turkey also enjoying my new grandaughter 5 weeks old now.

im still having my Herceptin injections they don’t finish till April, I was at Oncology the other day signing consent for the bisophates infusions (think that’s what they are called)

I’ve just recently been having pain in my left breast so trying to get a face to face appt as most of my appts with the breast clinic are phone calls since surgery.

sure it’s nothing to worry about.

lovely to hear from you x

Take care Jude xx

Hi jude, it's lovely to hear from you. I was often wondering how you were getting on. We have also returned on Tuesday from a 2 week holiday in Turkey. We went to kusadasi near izmir and had a lovely time.

I must admit I still get an occasional ache in my breast where I had lumpectomy. All my treatment has finished now until i have my first yearly check up in December. Its lovely to get back to normality. I only had to have 6mths of herceptin as invasive was very small.  What do the biosphates do? Is it another preventative treatment. 

Congratulations on your new grandchild. I'm at legoland with 2 of my grandsons on Saturday. That should wear me out.

Always good to hear how you are getting on. 

Take care, lesley xxx

Sorry  I think I have accidentally  flagged something  to the moderator,  not intentionally  Sorry.  I'm glad to hear you have both enjoyed your holiday and getting to spend time with new family :). My mum is on her 8th paclitaxel  on Wednesday, we can now see the finishing line.  I'm so proud of her and her journey , hair has thinned quite a bit but still hanging in there x I can't believe  it felt like yesterday  I was asking what ti expect from her first chemo and we are now 8 in , I see way like im part if it , my mam is so brave and is taking everything in her stride  xx take care