New to breast cancer and finding talking hard

FormerMember
FormerMember
  • 109 replies
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Hello All,

I'm new to this group and cancer.

I got diagnosed with stage 1,  grade 2 breast cancer on 13 May, so over a month ago. Initially I was told it was one small tumor and surgery provisionally booked for 16 June. My consultant referred me for a MRI scan to check for more tumors because I have dense breasts so the mamogram wasn't effective. Unfortunately the MRI detected another area of concern, so I have had further ultrasound and biopsy's taken and am now waiting for the results on this. My surgery is now postponed to 7 July, and I'm due to see my consultant on Thursday to be told the new plan. Hopefully the new area doesn't change things too much.

Some of the time I've been coping well and have tried to be mindful to live in the moment, and almost refuse to believe this is real!

But, I have found it difficult to talk about my diagnosis with anyone other than my partner. I can put on the brave face, but its so draining. I'm finding the uncertainty so hard and am struggling to sleep as I frequently wake up with anxiety. I haven't told many people yet.

When I'm struggling, I literally don't want to speak with anyone other than my partner. I have no interest in small talk, and to be honest no interest in anyone else, or much at all.  Its like I'm in a parallel world and its only me that matters, so I just don't want to do anything not in my narrow channel of what's necessary or that I want to do.

Do other people feel like this? 

I don't yet know if I will need Chemo, or just radio therapy, and I am just so nervous and worried about what is to come, how ill I will be, how much time off work I will need, the impact on my kids and partner. All the uncertainty is the worst.

So I thought I would join the group so I can dip in and see how others are getting on etc.

Best wishes to you all X

  • I've had a lumpectomy. It will be 3 weeks on Tuesday. Very achy and tingly arm whilst the nerves sort themselves out. Worst part was the stick from dressings and the pressure wad which had to stay on for 48 hours afterwards and which they stuck in my armpit. Get results on Wed. Radiotherapy is planned but getting very anxious waiting for results. Good luck x

  • Hi I am awaiting an mri to plan my surgery, I have two areas, one small of dcis and one  invasive both small, but they are just over 5cm away from each other, so mri to plan surgery, plastic surgeon advised theraputic mammoplasty, I have large breasts, and making my other breast asymmetrical at the same time. How big was your area and what was your diagnosis pls. My lymph nodes was scanned four weeks ago and they showed as healthy and mri will see my lymph nodes as well. Because of slight delay in surgery I have been started on hormone meds letrozole because my invasive is er positive 8/8 xx

    • Hi I’m  just hoping my breast will be normal colour by the time I have my op, as at the moment it’s still black and blue from the biopsy. Good luck with results on Wednesday hope all goes well 

    Diane x

  • Hi Shaz52 I was diagnosed last Wednesday with grade 1 invasive ductal carcinoma 12mm oestrogen + they scanned my lymph nodes the Wednesday before and took a biopsy, lymph nodes were healthy but they still have to remove 3 to test. I’m having a lumpectomy and 3 nodes removed in 3 weeks and then 6-8 weeks later radiotherapy and then have to take tamoxifen (because I haven’t gone through menopause completely yet) for 5-10 years, still waiting for the HER2 test as they didn’t have the results last Wednesday but the nurse in the breast test centre is phoning me tomorrow so perhaps I’ll find out then.

    hope you have your mri soon and all goes well

    Diane xx

  • FormerMember
    FormerMember

    Hi there

    Your story sounds so similar to mine. I also have dense breasts and MRI scan picked up a smaller speck but after an ultrasound, my team weren’t concerned about it. I told a few close family and friends at first and I can honestly say that I don’t know what id have done without their support. I had a lumpectomy on 25th May and three lymph nodes removed. Unfortunately one had cancer, one a trace and one was clear. I’m having more surgery on 29th June to remove all the lymph nodes. It has been a huge emotional roller coaster. Some days I’m really positive and some days I just cry. I still find it surreal when I talk about the fact that I have breast cancer. Will find out after the op to which treatment I will need.

    I don’t sleep very well either but sometimes listen to bbc sounds as they have some mindfulness music on there. 

    I have found this group helpful to discuss concerns that I’ve had. 

    Good luck with your operation. 
    Fi 

    xx

  • Hi, did you have your lymph nodes scanned before hand pls, my area is 11mm, lymph nodes scanned 4 weeks ago and they showed them healthy, mri in just over a week so they will be scanned again. Did your mri not show your lymph nodes xx

  • Hi yh my mri is just over a week away, my area is 11mm, been on letrozole for about 5 days, okay so far, I hadn't had a period for 4 years so that's why commenced on them. My mri will  confirm my surgery, fingers crossed theraputic mammoplasty, but I don't think they would be offering me if not possible, and check my lymph nodes, which was scanned four weeks ago and healthy. Will move forward with surgery from there. Did you say you could feel yours, I cannot feel mine. xx

  • FormerMember
    FormerMember in reply to Shaz52

    Hi

    My surgeon took three lymph nodes out during my lumpectomy. I had a MRI scan but nothing was said about the lymph nodes before the operation. I didn’t have a scan on the lymph node area for some reason. 

  • FormerMember
    FormerMember in reply to FormerMember

    Good luck for your surgery on 29th Fi, and I’m sorry to hear you have to go through that. We all hope not to have 2nd opps , but I hear it’s common. That will be the next worry , Such a rollercoaster. I have been told my surgeon will take one or 2 lymph nodes, I don’t know how they decide how many to take. 
    What size was your original tumour please?

    Jenny x

  • FormerMember
    FormerMember in reply to Tired Minion

    Hope your results are favourable TiredMinion. Fingers ,toes crossed Xx