Hello All,
I'm new to this group and cancer.
I got diagnosed with stage 1, grade 2 breast cancer on 13 May, so over a month ago. Initially I was told it was one small tumor and surgery provisionally booked for 16 June. My consultant referred me for a MRI scan to check for more tumors because I have dense breasts so the mamogram wasn't effective. Unfortunately the MRI detected another area of concern, so I have had further ultrasound and biopsy's taken and am now waiting for the results on this. My surgery is now postponed to 7 July, and I'm due to see my consultant on Thursday to be told the new plan. Hopefully the new area doesn't change things too much.
Some of the time I've been coping well and have tried to be mindful to live in the moment, and almost refuse to believe this is real!
But, I have found it difficult to talk about my diagnosis with anyone other than my partner. I can put on the brave face, but its so draining. I'm finding the uncertainty so hard and am struggling to sleep as I frequently wake up with anxiety. I haven't told many people yet.
When I'm struggling, I literally don't want to speak with anyone other than my partner. I have no interest in small talk, and to be honest no interest in anyone else, or much at all. Its like I'm in a parallel world and its only me that matters, so I just don't want to do anything not in my narrow channel of what's necessary or that I want to do.
Do other people feel like this?
I don't yet know if I will need Chemo, or just radio therapy, and I am just so nervous and worried about what is to come, how ill I will be, how much time off work I will need, the impact on my kids and partner. All the uncertainty is the worst.
So I thought I would join the group so I can dip in and see how others are getting on etc.
Best wishes to you all X
I'm doing fine I just wanted all you ladies to keep positive don't be afraid to talk n ask for help, I've been lucky had no pain been keeping myself busy the worst thing is not knowing when radiation starts . I'm pushing myself to get back to work..
I honestly don't know. I had mammograms and stereotactic mammogram before seeing Surgeon and some mammograms after biopsies using ultrasound to check on what MRI showed - i.e. to show proof where second tumour was in relation to another one (could have been the tail of the larger one or a separate small one) (turned out to be a separate one) and also on other breast to give final proof to Surgeon that a mastectomy was really necessary. There were a number of what they call "areas of concern" - i.e. multifocal - so too many tumours all over the place so she had to do mastectomy. It is the mastectomy which has caused me more trouble than the one where she did a lumpectomy - because of the haematoma. I am determined to give the implant a chance though.
I understand this. I feel i can't plan anything to move forward. I get my results next Wed so will hopefully know more. I had my surgery 8 June. I'm Cheshire based so not far from you. Do you know where your treatment will be? I have been back at work but working from home. Attention span is short though! Keep going and good luck.
Right large focus 30 mm with another 2 focus 3 and 5 mm. Left 29 mm.
Was your lobular, and could you feel them pls xxx
Not lobular, DCIS and invasive ductal carcinoma. Initially I felt nothing, though when I knew where it was - found on ultrasound by Radiologist after ordinary screening in a mobile unit in a supermarket car park, I could feel it as one in left was kind of near armpit area so my arm brushed against it at times and I could feel it. Did not at all know or feel the ones in right where needed mastectomy. Surgeon drew me diagrams. Nipple removed on the right. That was clear of cancer when tested by Pathology. I did not ask to see the MRI scans as she had 400 of them and were trying to rush them through and hold MDT meeting to decide what to do - I didn't feel I could much contribute, just went to the appts and did further biopsies after the MRI when asked to. One biopsy was clear, rest weren't in the right breast. Nodes all tested clear when biopsied, but several taken out during the op and all clear.
Hi all, I’m new to the site I’ve only just joined today. I had a letter from the breast clinic 2 weeks ago saying I had to go for an assessment following a routine mammogram. Had another mammogram, scan and biopsy on 18th June and had the results a week later (last Wednesday) the radiologist told me she was 99% positive but it still came as a shock being told I had grade 1 invasive ductal cancer 12mm, I was sure she said 2mm the week before, but I think I blanked most of it out. I just can’t get my head around it and keep hoping I’ll wake up. I haven’t told many people just my immediate family. I feel embarrassed which is kind of ridiculous and damaged, but I think that’s just my mind going nuts. Trying my best to stay positive and I was until last Thursday but now I just can’t stop crying. Best wishes to you all. Diane x
Welcome. I sympathise as I was similar. I found a lump. Within a few weeks of referral then biopsy, mammogram and ultrasound and results to be told I had cancer was a big shock. I couldn't stop crying for a few days. Even now, more than 2 weeks post surgery, I still have wobble days. Good news is that its been caught and treatment is so much better than it was. It is a lot to take in but keeping positive is good even though some days are hard going. Do you have treatment plan yet? Make use of breast care nurse if you have one and feel free to post more. I've chatted with some lovely people who understand. Good luck x
I never felt a lump, I’m 54 so this was my second mammogram delayed a year because of COVID, knew that something was wrong as my mother and 2 sisters had just had mammograms, my middle sister had it the same day as me, but they had their results in 2 weeks and I hadn’t had mine 4 weeks later, I even phoned and was told that they hadn’t been read which I thought was weird and then 2 days later I had a letter saying I had an assessment the following week. I just keep thinking 3 weeks ago I didn’t even realise anything was wrong, I check myself every week and never felt anything.
I have a pre-opp on Tuesday and they told me last Wednesday that I’d have a lumpectomy and radiotherapy and have to take Tamoxifen, don’t know about chemo as that depends on the HErR2 test.
thanks for replying
Diane x
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