Hello All,
I'm new to this group and cancer.
I got diagnosed with stage 1, grade 2 breast cancer on 13 May, so over a month ago. Initially I was told it was one small tumor and surgery provisionally booked for 16 June. My consultant referred me for a MRI scan to check for more tumors because I have dense breasts so the mamogram wasn't effective. Unfortunately the MRI detected another area of concern, so I have had further ultrasound and biopsy's taken and am now waiting for the results on this. My surgery is now postponed to 7 July, and I'm due to see my consultant on Thursday to be told the new plan. Hopefully the new area doesn't change things too much.
Some of the time I've been coping well and have tried to be mindful to live in the moment, and almost refuse to believe this is real!
But, I have found it difficult to talk about my diagnosis with anyone other than my partner. I can put on the brave face, but its so draining. I'm finding the uncertainty so hard and am struggling to sleep as I frequently wake up with anxiety. I haven't told many people yet.
When I'm struggling, I literally don't want to speak with anyone other than my partner. I have no interest in small talk, and to be honest no interest in anyone else, or much at all. Its like I'm in a parallel world and its only me that matters, so I just don't want to do anything not in my narrow channel of what's necessary or that I want to do.
Do other people feel like this?
I don't yet know if I will need Chemo, or just radio therapy, and I am just so nervous and worried about what is to come, how ill I will be, how much time off work I will need, the impact on my kids and partner. All the uncertainty is the worst.
So I thought I would join the group so I can dip in and see how others are getting on etc.
Best wishes to you all X
Hello Di, I totally understand where your at. I’ve been so up and down also, and like you in denial some of the time that this is happening to me, and I have at other times been so head FXxx I’ve thought I’m loosing my mind.
I think from reading what others say this is normal for our situation. Hopefully we will come to terms with things and it will get easier. I also think after surgery I will feel a big relief, hopefully you will also.
Jen xx
My tumour was 19mm. It was lower part of my breast. I was told I’d have one breast smaller than the other but my surgeon has done an amazing job and they appear to still be equal. I have a long scar along the bra line and one where the lymph nodes were removed but it will now be a longer scar after the rest of them are removed on Tuesday.
Another question i would be interested to hear from others experience; I’m so tired, I have read this can be a symptom of BC.
Actually my extreme tiredness started last spring after having Covid and I assumed it was the effect of long Covid, whic it may have been. It did get better in the Autumn I think briefly, but for a long time I’ve been so tired even when I’ve slept well. I’m ok in the morning and then have overwhelming tiredness in the afternoon and evening where I’m struggling to stay awake.
Have others experienced this, or is it just because I’m stressed?
Hope your all coping better than me xxx
I would say ny tiredness got worse. Post surgery - it's been 3 weeks- my body is trying to heal, I think I tried to do too much, I'm back to work albeit from home and my sleep is awful fuelled by emotions, hormones, anxiety and stress. It takes me a while to get moving in a morning, do ok then have the 3pm slump, I sometimes log off early and a few days I've had to resort to a nap. I'm still trying to take it all in. I think this is just ne as results tomorrow which I'm anxious about and coping or not with a parent with alzheimer's is not helping. I'm just trying to get thru each day as it comes. Have taken 2 of the strong painkillers tonight hoping I will sleep. Just as well there is fairy dust from moomy in the AWAKE thread x
Thanks Tired minion, I hope your results tomorrow are favourable and that will help you feel better.
My surgery is a week tomorrow, so my anxiety is increasing even though I want it done. It is all exhausting xx
Wishing you well with your surgery next week. Can I ask the size of your two areas. Mine in 11mm, been on letrozole for a week of slight delay in surgery and been fine on them so far xxx
Noticed your comment about feeling tired, must say I’m struggling even after a decent sleep I wake feeling more tired and takes me all morning to get going!
Having mastectomy on Monday so anxiety building up for that so probably not helping.
Good luck to everyone waiting on results or surgery x
Got my results and cancer all gone with surgery. Next up tamoxifen for 5 years and an appointment at the Christie for radiotherapy stint. I should be overjoyed which I am but to be honest feel a bit flat as I know there is more to come but won't be as bad as surgery! Oh well keep going....
That’s a positive for certain……more to come as you say, but, you’ve come a very long way already……onward and upward!
Best wishes with the next steps x
Thank you. I'm thinking of others too whose stories I've read. One day at a time ..
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