The annoying things people do - a rant!

Yes, those AI cramps are a real pest, Jgau but I understand your reluctance for follow on surgery now. How is your hip doing? Was it a replacement? 

I’ve been (on advice from the late effects radiotherapy team)doing  a deep tissue massage all round the rads affected area and my shoulder movement is now improving (it was always full range but very tight at extremes) and the tight feelings are easing just a little. They won’t actually see me till July as they want a year after rads, to settle. Side effects from Exemestane etc do include foot and ankle aches and cramps, as I began to experience them at the end of my first stint, began to improve a little in the year off, but back again with a vengeance. Ah well,.. 

Hugs xxx

Hi again,  yes it was a total hip replacement done last year.  I was doing really well until I tripped and fell in the bedroom, so it’s aching a bit and gardening doesn’t help but we do what we must do.  My feet will never be the same!  I just read someone mentioned silicone socks, think I’ll get some then I can apply magnesium oil (I take tablets for the cramp).  My arm and shoulder seem similar to yours - pain at the extreme.  I go to a brilliant lympho physio - she really helps.  I started on Letrazole then Anastrazole now Tamoxifen we just plod through don’t we?  I’m literally on the verge of cramp every time I move.  You do seem to have an incredible amount of energy and I know you have had more than most of us to deal with.  I hope you enjoy your holiday and continue this “interesting” journey.  I’m going to Pilates today hope my hip does not complain.  I’ve had about 4 months out due to what seemed like an everlasting cough from hell.  Now on symbicort.  Asthma!  Hey ho!  Let’s enjoy this wonderful spring weather.  Big hugs xxxxx

Hi Supermeg90  I totally agree with you.  you've got this, you are so brave you will beat this and the worst for me is when someone say 'be positive'.  I had breastcancer 12 years ago and last year it has returned and is incureable.  People say to me you beat this once you can again.  Dont they know what incureable means?  I get worked up but just smile and say yes.  

Lee x

Oh my, you’ve been through the wars too, Jgau ! Hope Pilates is kind to you! Hubs’ second hip dislocated at exactly 6 weeks when the physio suggested he start working towards his ankle! (He was sitting on an office swivel chair and thought he’d try and get his sock off! I heard the scream and was on 999 even before I got to him!) otherwise straightforward!

Hugs xxx 

I'm nearly 8 years down the line from mine and the one that annoyed me the most was someone (who was supposed to be one of my very best friends) saying "Person had it and they were fine".  It really sticks with me because there are so many different types of breast cancer/every person is different and you'd expect a bit of support from friends, but that literally was all the support I got from that particular friend!  

I'd ask if she wants to flash her knickers regions to all comers. Weird thing for me to say but not a clue where/what type of this sh*# show you have. 

Someone asked me the same thing, so I said show me yours first. Shut the boss down beeping fast!

You do you and everyone else can go for a very long walk off a teeny tiny pier

Enjoyed the replies, made me feel less bad!

1. Moomy oh goodness that must have been agony!  Sorry to everyone for me chatting to Moomy on this particular thread xxp

Hi. It's good to have a rant. My husband has listened to me ranting so much, bless him. 

I'm always amazed how people see us after diagnosis. I had a 'friend' tell me she thought I wanted to distance myself from the group I've known since childhood when I had to cancel going out with them a few times because I didn't feel well enough to go. Not one of them has visited me since my operation last May. 

Oh, and when people say " I'm always there for you" and when I ask for help, don't answer. 

I could go on and on. Lol. 

When I first told family and friends I made a point of saying I wasn't 'doing' the military language:  not a 'battle' or 'fight' (cos if the treatment doesn't work it would then be because I didn't 'fight hard enough', wouldn't it?) Luckily all the people I care about agreed with this approach. People sometimes try to encourage you by telling you of people who have completed treatment and are now fine. My usual response is that that is great for them, but the thing you really find out once you get your own diagnosis is that every cancer is different, every person's experience of it is different, everyone's treatment regime is different, and everyone's reaction to that treatment is different! Comparisons just don't help at all. 

Best of luck to everyone.