Breast cancer confusion. Worry

Sorry 2024 fat fingers 

Hi Sarahlou84 , sorry you find yourself here, it’s very frightening to get a cancer diagnosis and you are currently in that tortuous limbo land, waiting to get started with treatments and also for more information gathering by the medics (margins, pathology of lymph nodes etc). My breast cancer was different and I was a lot older, but 2 friends had breast cancer in their 40s, one was HER2 positive, the other triple negative. Both with lymph node involvement. Both had chemo, surgery and radiotherapy (not necessarily in that order in both cases). Fast forward 10 plus years and they’re both doing well with no recurrence. Just thought I’d put their stories here. There are other positive stories and I’m sure folk here will pop in with theirs. Please try to resist googling at all. So much out there is out of date or just wrong and most of it will probably never apply to you. 
Will be thinking of you tomorrow. Sending love and a big virtual hug, HFxx

Hi Sarahlou

so sorry to hear of your diagnosis.

A routine (my first!) mammogram picked up something suspicious and I was diagnosed with bilateral invasive lobular breast cancer. (ER 8/PR8 but HER negative)

I have had 2 lumpectomies and the sentinel lymph node biopsy. Fortunately margins were clear so now I am waiting for radiotherapy and hormone therapy. Its human nature sounds like your treatment plan is currently quite similar?

It’s human nature to race ahead and think the worst and the waiting for results has definitely been the hardest thing for me. 

Hopefully you will know more after your surgery and there are treatments that will be tailored to your cancer. 

Sending you all good thoughts and wishes x

Hi thank you for replying an thank you for hope...

Im not sure all this medical stuff but its the bit that said surspected/ metastatic surspious lynode or something couldn't read it again my gran who's 84 my rock took the letter to stop me crying. If it's spread why it do a lumpectomy an reconstruction... if i no chance. An i kept asking about my iondied ct scan an he said looked OK. No bone scan was needed  2 weeks before now it's surgery an radiotherapy.. no chemo nothing. 

If its spresd metastatic surly I need chemo an radiotherapy... 

I need as long as i can so my baby girl turns 18. For pr for my boys.

Got no other family 

Xx 

Hi Sarahlou84

Welcome to the forum and I am sorry to hear that you have been diagnosed with breast cancer and that you are feeling confused.  

I see that you are worried that they haven't said anything about you having chemo, while it's easy to say I wouldn't worry about it as that could change after the results of your surgery come back.

I was diagnosed with triple negative breast cancer just over four years ago in my left breast with lymph node involvement and after having chemo, surgery and radiotherapy I made a full recovery.  I was also diagnosed with a different breast cancer in my other breast over a year ago and again after having surgery, chemo and radiotherapy I am currently cancer free.

Wishing you the best of luck with your surgery and the results.

Best wishes

Daisy53

Hi daisy 53... 

Thank you for replying.

thats fantastic news i goad your doing well....

its all so scarey.  And think with the kids being so young  its more difficult... i dnt know much an surching sites an gogles just diagnosed me with a yr to 3 max to live with metastatic cancer its so scarey. I dnt know much about cancer or medicine tbh. When it's in the tissue or lynodes is that classed as metastatic... surspected... and lynode surspious 

Just so scared..

Xx

Hi Sarahlou84

The information on google is years out of date and doesn't take into account the advances that have been in breast cancer treatment over the last five years.  Rely on sites like this one or Breast Cancer Now for your information. There has been a number of advances in treatment  since I was first diagnosed with breast cancer.

I suggest that you ring your breast care nurse to talk over your fears with them and they should be able to set your mind at ease.

xx

Thank you.

I'm in surgery tomorrow  so it's possibly to late for that. So much to take in at once. Looked at these sites an none say what I'm looking for but I pray your right about Google that's gave me some scarey prognosis an time lines so I won't be using them again. Xx

 Hi so sorry ....

I thought i had replied to you... 

Hope your well, yes my treatment sounds similar to yours atm. 

Untill I get my surgery biopsy 

Back. 

They said yesterday that they had removed all the cancer, but there was still the surspious node. 

So I asked what next he said if needed possible removal of more nodes.. 

Praying for a small miracle... I was Catholic as a child but these past 8 weeks dnt think I prayed so much in my life. 

We all need more time here.

With our loved ones 

Certainly made me put things into perspective. An priorities of family 1st not work. An petty things even the trees in the wind suddenly look beautiful the same tree I've seen for the last 8 yrs in this new house 

Xxxx

My friend was a similar age to you when diagnosed. Her breast cancer was in both breasts, no option of a lumpectomy in either, double mastectomy. The lymph nodes were affected too. She lived a further 28 years and her cause of death was unrelated to the breast cancer. I have just been diagnosed myself, that’s why I am on the forum. Wishing you a speedy recovery   xx