Genetic testing wait time for results

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Hello and happy new year to you all x

I was treated for breast cancer early last year and am currently on Tamoxifen for my 5 years.

However, due to quite a number of breast, ovarian and prostate cancer around my family my consultant referred me to genetics to see if I qualify for testing. I had my consultation with a genetic counsellor in May last year and it was confirmed that there is a risk of gene mutation and so I had my bloods done toward the end of May. I was initially told the results would be back in 8 to 12 weeks. That time came and went and since then I keep being told there's a huge backlog and unfortunately the results are very delayed. It's now over 7 months!

Has anyone else been waiting for what feels like an eternity?

I know it's just test results, but when the result could mean some huge decisions may need to be made, it just hangs over my head constantly. I try to just get on and not worry, but it's really hard not to! 

Would really love to know if I'm alone with this.

Thanks xx

  • That wait time doesn't seem right.

    I had my genetic tests done last March, was told 6-8 week wait and the results came back in May, on time.

  • Hi, thanks for the reply...I am in contact with the genetic counsellor and she just keeps apologising and saying the wait times keep getting longer. I asked if she can reassure me that everything is OK and she said basically this is the wait and she will be in contact when the results are back. But I've not seen anyone else having the same issues. I don't know where to go to get more clarification and just feel that the ladt 15 months have been a constant wait for results. It messes with your head!

    Thanks again x

  • Just a thought, where in the country was your sample tested? Mine went to Addenbrookes, Cambridge x

  • I'm in Devon and my treatment has all been through the RD&E in Exeter.

    I wouldn't know where the testing was done and I just assume it was internal.

  • That's fine, thank you so much xx

  • Hi  , I had my genetics appointment and blood test in January last year, and got the results 3 months later. The blood test was taken at St Marks hospital in north west London, and it was analysed at Great Ormond Street. That sounds like a ridiculously long wait, sorry you’re going through that. The whole thing is stressful enough! I hope you hear soon. It’s such a ‘limbo’ time, waiting for results. Love and hugs, HFxx

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • Thank you, seems like it may just be Addenbrookes for some reason x

  • My daughter had her test and when the 8 week wait passed she rang and  they gave her a telephone consultation a week later. My other daughter who hasn’t been tested yet has been told she has to wait until at least spring due to so many people needing testing 

  • Hi 

    I was tested last June and results where back 3 weeks later that was Shropshire .

  • Thanks Vicky, I've had my consultation and done the blood test and it's the results of this I'm waiting on. 

    I hope both your daughters get their tests and results soon xx