Anyone Er+ but HER2- that has had chemo before surgery ?

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Hi 

Is anyone Er + but Her- have chemo to shrink the tumour before surgery ? Dr muttered something about the muscle being affected and extent of the disease but I didn’t pick up on it until later 
I cannot find anyone who has had this , Dr seems to be changing original plans , my anxiety levels are high yet again 

thanks 

L xx

  • Hi, I had chemo before surgery, I am ER+ but also HER+ So not quite the same. I'd suggest you call the Doctor and ask for some more information. It's easy to forget everything as it's a lot to take in and in my experience the medical team don't mind being asked for clarification. Good luck 

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  • Thank you for replying 

    I’m assuming it’s because my tumour is very large , maybe surgery will be more straightforward if it could be shrunk down some but I’ll definitely ask 

    Just wondered if anyone had been in a similar situation 

    love 

    L xx

  • Hi, my lump was 55mm, so quite large, and the chemo shrank it to 11mm before surgery. This did mean I could have a lumpectomy rather than anything more invasive and when they removed the lump they actually found no active cancer cells and no spread, so the chemo had done it's job.   Maybe this gives you a different perspective, take care x

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  • Thank you , yes that was a brilliant response wasn’t it , wow , so pleased you were able to have a lumpectomy and nothing more invasive 

    I’m trying to think positively and try to remember that although we all have BC in its various forms , we are all different in terms of the treatment plans given by the medics to help us 

    I’m a terrible overthinker 

    It’s just a lonely place to be in until you find there are others feeling the same 

    Love L xx

  • I’m ER+ but Her- and have just started chemo before surgery. They said it was because it’s spread to my lymph nodes and is grade 3 so want to blast it first then smaller amount of surgery needed. 

  • Hi 

    ah that makes sense doesn’t it 

    Do you mind me asking what chemo you are on ? How are you getting on ? 

    L xx

  • Started yesterday on EC - 4 rounds in total fortnightly then switch to Paclataxel for 4 more rounds fortnightly. First session yesterday was fine, the cold cap was the worst bit but that improved over time. Felt pretty rough overnight (headache & nausea) but now feel ok. 
    Do you know what treatment you’ll have yet? 

  • Me too. I had my first EC on the 10th Feb, last treatment hopefully the end of May with surgery in July. Consultant said it was just the way that they do it sometimesNeutral face

  • Glad you’ve not been too bad with it , do you know when you’ll have your surgery after that ? 

    I don’t have my first appointment with oncologist until 8th March , it’s a worry waiting ! I’m having constant panic attacks 


    Hope it continues to go alright for you x

    I don’t know whether to have the cold cap or if it’s even an option for me 

    L

    xx

  • Last treatment is 26th May if all goes to plan, rest the body for 5-6 weeks surgery then radiotherapy after that. I found the waiting the worst thing to cope with!

    The first appointment for me was 18th Nov with my GP. Who sent me for a 2 week fast track appointment that was 6 weeks later so I understand your concerns. I had the oncology appointment on 2nd Feb and told I would start the treatment within 2/3 weeks but then had a call on the following Tuesday to start on the Thursday and yes even though they said it was because they hadn't reached their targets, all the thoughts go through your head. Time drags more so when your waiting but just make the most of doing normal things until your new journey begins.

    I have used the cold cap but it's early days so not sure how it's going to go.

    Take care x