Stage 2 invasive DCIS E+ and HER2+

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  1. Quick back story, Was diagnosed in sept 21  (after being misdiagnosed since April 21) mastectomy and SNB (1/3 positive) Nov 21 26mm invasive with a total of 92mm (non ivasive and invasive) was due to start chemo in the Jan 22 but my youngest DD got covid and then so did I, so chemo was deferred until Feb 22. Started chemotherapy last week, having 5FEC-T and then on the 4th cycle I will start Herceptin.
  2. Just really wanted some positive vibes tbh as although yes I know my cancer has a positive outcome at the end of all the treatments (consultant said 98% survival rate for the next 10 years), it is a very scary place to be especially when I have children at home and my partner lives elsewhere, it's harder that I am not allowed to bring anybody with me while I have the chemotherapy due to covid restrictions etc. Anyway, I hope everyone is doing ok. Thank you for reading x
  • Hi Tam.

    Glad you are feeling okay. I usually count my injections down too as hate them.

    Only injections I know I get after my op is the Herceptin every 3 weeks for the year and the started last Tuesday before I got my chemo.

    Just waiting on my bed time meds. My room is the last one on their rounds so it's nearer 11 before I can get my light off. Just had a bit of diarrhoea there bit not anything like it has been and that's the 1st since 7.30 this morning so definitely coming through the other end.

    Night everyone hope you all have a good day tomorrow xxxHeartHeart

  • Morning Seaside

    How are you this morning?

    Glad to hear that you enjoyed your visit with your sisters.

    Such a shame that you'll be there to Sunday, but I'm sure it'll be for the best. At least now you know that the next few days will only get better, especially since you don't have to have any more injections. You'll soon be home.

    Our anniversary is on the 23rd. When is it yours?

    Looking forward to seeing my son and his family soon. It looks like my other son will also be joining us tooBlush. It's going to be quite a gathering since my daughter ( she still living with me) is also having her boyfriend along too! I hope I keep up my energy levels Fingers crossed. But it will be a real tonic to see everyone though.

    I hope things settle and you start to feel better. 

    Lots of hugs Hugging xx

  • Morning

    Had another episode last Night about 10.30 then slept till another one at 5.30 then again at 8 so things not really settling with diarrhoea although yesterday was a good bit in between but that's about it. I am not feeling as unwell though it may be into next week before I get home now.

    That will be wonderful to have your family around you today, enjoy every minute. They will keep your energy levels up.

    Hope you and everyone else are well and have a lovely day xxx HeartHeart

  • Morning ladies

    How is everyone this morning?

    Tizzy how are you on your first day after chemo? Did your daughter have a good birthday? Such a sweet age..3.

    DeeDee. I often feel very tired and finding that I'm sleeping a lot. It's our bodies telling us to rest. It does get better though. It's a good sign that you've got a better appitte though. 

    Txl47. How are you doing? Is this day 3 for you ? 

    Jebe how are you doing?

    I hope everyone has a good day 

    Lots of hugs HuggingHuggingxx

  • Aww. So sorry to hear that Seaside. It must be miserable for you. Get your hubby to bring things in for you to read. Or even some mindful colouring?

    Love the picture and quite Heart xxz

  • Hi Thumper, I'm doing well, no main side effects as if yet, been eating polo's to combat the metal taste in my mouth which seem to be working. The phesgo injection stung yesterday so my leg (about mOpen mouthknee) is feeling sore when I bend it, will keep an eye on it though and if it gets any worse I'll ring my chemo team, but it doesn't feel hot to touch. My daughter had a great day thank you, my fronOpen mouthroom looks like a bomb has gone off in it but that can be sorted tomorrow, I'm not in a rush this evening. I have to be up at 5am with my other daughter as she has a dance competition in Peterborough so they're leaving at 6:15am as the doors open at 8:30am :-o. I hope everybody is doing well xx love and hugs to you all xx

  • So glad you are feeling okay Tizzy and your daughter had a great birthday.

    Good luck to you other daughter tomorrow.Fingers crossed

    I am still in as Potassium levels are too low. To get Potassium supplements and another blood test tomorrow after lunch to see if down. So far no more diarrhoea so hoping that's settling.Fingers crossed

    Hope everyone else are doing well.

    Sending love and hugs xxxHeartHeart

  • Hi Tizzy

    Glad to hear that you're doing okay. I'll have to remember the polo mints too.

    You must make sure that the BCN is aware of your pain from the Phesgo injection. Especially since if it seems to be getting to  bit hot too.

    I've got have the Phesgo injections too. I start on the following Tuesday. Not sure how I feel about them. Then the day after I start the new cycles of chemo.

    Sounds like your daughter must have had a lovely birthday...the mess can wait till another day. 5am! I'm not sure I could deal with waking up so early. 

    I've had a really lovely day with my family today Relaxed️...with my son and his family, my other son and my daughter and her boyfriend. It was really lovely seeing them all together and spending so much quality time with them all Relaxed️Relaxed...such a real tonic and mood booster. Just what the doctor ordered. Relaxed️Relaxed

    I️️ hope everyone else doing okay

    Love and hugs to all HuggingHeart️xx

  • Hi Seaside

    Sorry to hear that your potassium levels are too low. What's caused that? Have they said?

    At least the diarrhea has stopped. I'll keep my Fingers crossed for that it stays that way.

    Do you feel any better in yourself yet?

    Lots of hugs and love HuggingHeart️ xxz

  • Sorry to hear you're still not well, good news that there's no more diarrhea, fingers crossed it stays that way and you get to go home soon, sending you hugs xx