Stage 2 invasive DCIS E+ and HER2+

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  1. Quick back story, Was diagnosed in sept 21  (after being misdiagnosed since April 21) mastectomy and SNB (1/3 positive) Nov 21 26mm invasive with a total of 92mm (non ivasive and invasive) was due to start chemo in the Jan 22 but my youngest DD got covid and then so did I, so chemo was deferred until Feb 22. Started chemotherapy last week, having 5FEC-T and then on the 4th cycle I will start Herceptin.
  2. Just really wanted some positive vibes tbh as although yes I know my cancer has a positive outcome at the end of all the treatments (consultant said 98% survival rate for the next 10 years), it is a very scary place to be especially when I have children at home and my partner lives elsewhere, it's harder that I am not allowed to bring anybody with me while I have the chemotherapy due to covid restrictions etc. Anyway, I hope everyone is doing ok. Thank you for reading x
  • O I know, I can't say I'm looking forward to that alarm if I'm honest lol. At least I can grab an extra hour on the sofa once they've left before little one wakes up. I have my ex here (keeping it amicable for the kids) so he can bring babs down once she's awake.

    Yes I will keep an eye on how my leg is, it only seems to hurt when I bend my knee, so walking is a struggle at the min. 

    Glad to hear you've spent the day with your family, they really are a good mood booster, I don't know what I'd do without my kiddies here, they sure brighten up the dark days xx

  • FormerMember
    FormerMember in reply to Seaside

    Hi  , 

    Oh that’s annoying about the potassium… tell them you’ll eat lots of bananas when you get home! Seriously though I hope you get home soon, you’re doing so well being stuck there but glad you’ve been able to see your family etc.

     I’m not too bad, mostly the tiredness and my impatience to want to get back to “normal” is the main thing along with the horrible mouth taste which is arriving right on cue… this time around I’m obsessed with chocolate wafer biscuits it seems, to get rid of the taste! That and the usual cheese and bananas! But I have to just remember it’s only a few days then it should get better…

    hope the leg is ok and good luck with the early up tomorrow! 

    DeeDee hope you're doing ok too?

    Tam xx

  • Morning Katharine 

    Feeling a good bit better this morning. Only a very small amount of diarrhoea during the night first in 18 hours.

    The constant iarrhoea has depleted my Potassium level I think.

    Started a supplement last night and to get more today. More bloods after lunch to see if it has gone up.

    To eat bananas today too. I was very weepy last night as its a long night to try and keep yourself amused.

    Hubby had been here most of the day but we are a good drive away from here so he's stays as long as he can. He is coming up today too

    Sounds like a grand day with your family, I don't think there is anything better.

    Hope your day goes well.

    Hoping everyone else are doing well.

    Lots of love xxxHeartHeart

  • Morning Tam

    I have 2 bananas here just now so going to eat them with my toast.

    I feel I just need home now as that's my 7th day here.

    Glad your finding food to help with your taste and hoping you feel better in a few days.

    Sending love xxHeart

  • Morning Tizzy

    Hope you are doing okay after your early rise.

    Best of luck to your daughter and hope she does well.

    Sending love and hugs HeartHeart

  • FormerMember
    FormerMember in reply to Seaside

    Oh  I really hope you get to go home today. You’ve been through so much. Fingers crossed for you today. Xx

  • Morning Ladies

    Ive had a rubbish saturday,the nausea has been horrible,anti sickness dont seem to touch it,i just spent yesterday in bed feeling sorry for myself,sleep seems escape from it all,so i take it,woke in the night tearful,and angry again,the downer seems to come after the chemo,i have counselling on friday which may or may help,dont feel ive connected with her,so its strange.

    Nurses came this morning and one injection looked dodgy,so she had to take another from fridge and it hurt,so now we are down one injection,told me to leave it with her,just another thing to make me cry.

    Sorry ladies im so sad today.

    Seaside sorry youre still in,its awful for you,hope youll get home soon for happier days.

    Tam hope youre ok,taste and tiredness no fun

    Jebe thumper and tizzy sending you love

    Dee xx

  • FormerMember
    FormerMember in reply to DeeDee54

    Oh Dee, I have been down too. The first 5 or 6 days after the treatment is just horrible, by the Friday/Saturday I feel awful and down and teary. I mentioned it to my oncologist and he said it could also be an effect of coming off the 3 days of steroids quite suddenly. I was on 8mg for 3 days - day before, day of, day after - so he extended them and weaned me off them more gradually this time so I stopped the last ones today. You could maybe ask to try that? 
    Having said that I do still feel down today, I think because I just have that horrible taste in my mouth which just won’t go away, and I feel tired and a bit sickly. I’m also on my own today as my partner is playing hockey so I’m just feeling a bit sorry for myself!! 

    It will be over soon, for us all, it’s not forever, each day however crap it is, is a day nearer to the end of our nightmares!

    Stay strong everyone! Xx

  • Oh Dee it's awful isn't it just know what you are going through. Things do get better but it doesn't help at the time.

    I don't see me getting home tonight. Just so hungry now and hospital food is just awful. I don't know how they expect you to build your strength up with it.

    Hubby here just now and brought me a sandwich and when he goes my 2 girls visiting with some wee jellies and crackers so hoping to eat a but more today.

    Sending love and hugs Dee and just hang in there. Christina  xxxHeartHeartHeart

  • Hi Tam

    That's a shame you not firing and feel down but it's only to be expected with this treatment and hope it will pass.

    I cried all last night as these should be the days I feel good after the chemo but this diarrhoea took its course.

    You are right it's just a day nearer the finish and we will get through it.

    I just want home and start building up my stamina again so I am fit for next chemo.

    We are all in this together and know exactly what we are all going through. Hang in there.

    Sending love and hugs. Christina  xxxHeartHeart