Stage 2 invasive DCIS E+ and HER2+

Former Member
Former Member
  • 858 replies
  • 267 subscribers
  • 32323 views
  1. Quick back story, Was diagnosed in sept 21  (after being misdiagnosed since April 21) mastectomy and SNB (1/3 positive) Nov 21 26mm invasive with a total of 92mm (non ivasive and invasive) was due to start chemo in the Jan 22 but my youngest DD got covid and then so did I, so chemo was deferred until Feb 22. Started chemotherapy last week, having 5FEC-T and then on the 4th cycle I will start Herceptin.
  2. Just really wanted some positive vibes tbh as although yes I know my cancer has a positive outcome at the end of all the treatments (consultant said 98% survival rate for the next 10 years), it is a very scary place to be especially when I have children at home and my partner lives elsewhere, it's harder that I am not allowed to bring anybody with me while I have the chemotherapy due to covid restrictions etc. Anyway, I hope everyone is doing ok. Thank you for reading x
  • Former Member
    Former Member

    Yes, to help the bone marrow produce white blood cells x

  • Just thought I'd ask as we all seem to be having injections of one thing or another, it's hard to keep up.. Or is that just me Joy

  • Hi Seaside

    I'm glad to hear that you're feeling good today. I'm feeling okay too today, but I only started to feel okay since day 15/16. Like you, it was my 2nd EC cycle. 

    My next EC cycle is next Tues 12th. 

    I've not long got back from seeing my consultant today (took over 2 hours just in waiting time!) She's now says that I will have to have at least 4 cycles of EC rather than 3, before I start on the docetexal ,Slight frown

    She did add that the tumour has responded well and has shrunk, so that's good. I'll have to try and focus on that positive.

    Hope you carry on feeling good till to your next EC cycle.

     Take care.White sun small cloudSunny️Rabbit2️  xxx

  • Sending hugs.  I have a scan next Tuesday to see what the current situation is after 2 cycles.

    Hang in there just a day a a time xxx

  • Hi Thumper. Positive news the tumour has shrunk. Its a long haul but hopefully one more EC should do the trick before the docetaxol starts.Fingers crossed

    I am still doing okay but stomach a bit funny with indigestion but got the Rennie ready.

    Stay strong and hang in there. Sending hugs xxxHeartHeartRainbowRainbow

  • Great news Thumper.. At least all those horrible drugs are doing the job . 

  • Hope you feel better tomorrow.  Sending hugs xxxRainbowThumbsup

  • Thanks Jebe

    Do you start your docetexal  on the 15th? That's my hubby's 60th birthday! Unfortunately I won't be feel like celebrating much with him..just n2 days after my EC Slight frown Good job the kids have it in hand ( they're adults..25, 27 and 31yrs!) So hopefully he'll have a good time.

    I hope all goes well for you. At least it's one more ticked off and nearer to the end of treatment xx

  • I do.. Thankyou Thumper. 

    Oh that's a shame for you & your hubby. Sadly we've missed a few birthdays so are now going to have a big party later in the year.. 

  • Former Member
    Former Member in reply to Jebe

    Yes, my chemo team keep asking if im on blood thinner injections or the white cell injections or something else. I said well it should be in my notes tbf. I know in a few months I'll be starting prostap which I think is to help my bones??? That's an injection every 3 months. I'll be so glad to see the back of the injections, for some reason they hurt more this time round then the last. I didn't have a horrible cough this time round although the first night after chemo I woke up coughing a lot so had to use my reliever inhaler a couple of times to get it under control. 

    It strange as I know what my baseline side effects are but cycle 2 seemed to effected me less then this time round, not sure if that's because I only had a 3 week break between them or what. 

    I always end up with oral thrush after every cycle of chemo too, keep using corsodal mouthwash and nystatin but nothing seems to be working atm. Barely ate or drank the last 2 days as I felt awful and couldn't taste anything, but today is a better day I've eaten more etc. Just wait till Monday and see how I feel etc x