Hi
(For new readers who may be interested have a look at my profile)
Had an appointment today for follow up after radiotherapy. The gorgeous consultant (and ladies he is a really handsome man) was very happy with how radiotherapy has gone. But very concerned about how my mobility is deteriorating and how quickly. He asked what tests I'd had done and looked at results. Said I needed an MRI on my back to see what the nerves are doing. Tried to organise one today but no slots. Do has decided to admit me. Home at moment waiting for a call that a bed is free. Likely to be tonight or tomorrow morning. In the meantime he is stuffing me with steroids (bye bye sleep).
I am quite happy to go in. Will hopefully get a whole raft of tests and see a neurologist while I'm there. Okly downside is it is not my local hospital but where I had op and radiotherapy. 75 mile round trip. But I can live with that if they can get to bottom of issues and help improve my current situation.
So sending hubby to pack bag soon on readiness. Better write everything down.....
,
So sorry this is happening to you after all you have been through already.
Hope the plasma works.
My mum is in hospital at the moment, it’s my youngest Birthday in Sunday and we are having a party on Saturday my mum is telling them she wants to be home for then but it’s looking doubtful.
Im sure all your family will be with you if you do have to stay in.
Sending hugs 
Tina x x
I was just about to write on your thread AnnJac, I got wrapped up in writing a christmas 'thank you' to everyone. I hope you have got an idea what you are thinking of doing for Christmas day... actually, you know what, I don't know why I even said this, I suppose this is the 'we know what we are doing for Christmas' - well, I confess, we don't know what is happening. We normally go to my brothers, however, this year nothing has been said, it's not the sort of thing I'd feel comfortable 'asking' if we are going - just doesn't seem right, so at present it could be hahaha dinner on lap trays. The main thing is that we find a way to enjoy the day, we put too much pressure on ourselves - just need to be with the ones we love and have a laugh, that is the most important part.
Sorry, I'm waffling.....
How are you feeling AnnJac - I hope they have kept you away from the hoist (I reckon they have warped sense of human and take bets on who to play up).. Have you started or heard any more on treatment? I've just realised you have had one treatment of the plasma exchange, like seaspirit44 I missed your post arrrghhh. of course it is too soon to see how you are with this, so pleased to hear this treatment has started and I more than anything, I really hope we see improvements 
How is hubby?
We are all thinking of you and sending loads of love and hugs xxxxx
