Being admitted to hospital . . .

Lovely email - thank you WhatHappened.

Further update:

After speaking with his colleague in Leeds my consultant has offered me a plasma exchange.  However this is a list ditch attempt at halting this thing and he has told me not to get my hopes up.   The Leeds consultant thinks MND is still a possibility but whatever it is it is very severe and not been seen like this before.  But all convinced chemo induced

So the odds are against me I'm afraid.  I am very tired and struggling to keep fighting. But will do my best

I do hope the plasma exchange helps. As your expeince has been unusual all along to say the least maybe it will be a surlrise to docs how well you respond.

None of us can begin to imagine what you are dealing with every day so every time I write it is to say what a special lady. Oh and you are allowed to have rest days from this battle and feel any which way you want to!. Hugs

Dearest , 

I do hope that a plasma exchange helps you far more than they think. It’s high time that ‘something’ helps stop this in its tracks and enables some stability. 

Sending you lots of love and hugs xxxx

Having line put into jugular over weekend and start plasma exchange on Monday.  

They are planning a PET scan sometime to finally check I am cancer free.

I asked to be hoisted for toiletting on commode today for emptying bowels and health care worker hoisted me up over bed and left me dangling over a bed pan.  I will not allow that to happen again.  I should have been sat on a commode.  Breaching lots of rules I fear.  And all staff tonight are agency.  Not properly briefed.

Grumbling but a lot of staff are lovely and kind.  My favourite support worker who was coming to ne at home's wife works on here.  She is lovely 

I could weep. You are NOT grumbling. You deserve to be treated with dignity and respect. It is so important that you should feel safe and that carers are able to walk in your shoes.

Please ask to have a chat with the ward manager and explain how errors in care make you feel. There are so many things you can't control at present and it's important you keep a handle on those you can, if you have the energy. 

Such a conversation should be able to take place without staff getting defensive and your treatment plan can be amended. If you can stop this indignity from happening again or to someone else you will have achieved something. Also the HCA concerned will have learnt something.

Hope all goes well with the CVP line and treatment to follow.  Your attitude is amazing and will stand you in good stead. Hugs

Dearest , 

that is just not good enough, you need to talk to the ward manager (what would a matron have said?) to get this sorted!

really hope things improve and things go smoother for you.....

sending a big hug xxx

Morning lovely , glad treatment is moving forward but I am LIVID about the way you have been treated. I teach in a special school and all of my students need assistance, mostly using slings and hoists. On our regular training sessions we all have to lie on a bed and be hoisted so that we have some idea how our students might feel. ALL have plans which must be followed. I’m just so horrified that you were put at risk and treated with such lack of respect. Disgraceful. You are certainly not ‘grumbling’, I’d say you’re showing remarkable restraint and resilience. 

Hope today is better and I’m so hoping the plasma exchange has the desired effect. Here are some flowers if I manage to download the photo, wish I was delivering a proper bunch in person. Lots of love and a big cyber hug, HFxxxx

, so sorry you have been treated with such ignorance and carelessness. I do hope you have enough energy to state your case very firmly, ensuring nothing like that happens again.

I hope very much that the plasma exchange stops the deterioration. 

Lots of love xxxxx

Annjac , nothing I can say to help , wish there was , I have been reading all your posts while you have been on the site , and it is becoming increasingly frustrating , that you are treated this way . I hope the plasma exchange helps , and you get some knowledgable , caring  nurses …….continuity would help , but I am afraid this is getting rarer in hospitals .

My friend works on a medical ward , and the sister insists they cannot work in a bay 2 days running , so when she gets to know one lot of patients she is moved on , she finds it very frustrating !

Best wishes ,,,,me x

, I am so mad for you, it is such a sad state the way people get treaded and most of all, it seems that the very people that are quiet, kind, the very one's that would hate this happening to are the ones these people to this too.  

My goodness, I so feel for you, you should not of had to go through this, this is not your fault, these people are getting paid to do this!! It brings back memories of my dear father, they flipping hoist is so badly designed (I was adamant I'd try to re-design it see how my dear dad hated it).  Dad had the extra venerability of being on the 12th floor of the hospital with the hoist right in front of the window, so dad was leave with the window feeling very vulnerable when.... the battery went in the hoist!! Dad had to stay there whilst staff looked for the power lead!!! Absolutely disgusting!! No-one should be made to feel like this!!! 

Especially as there are ways to move, lift from bed to commode - I do sometimes think there are certain people that really should not be in there jobs, especially when I hear the words, I'm not paid to do that or I can't to this or that!!! My dear dad was a very quiet, kind, gentleman that would ask for nothing - Dad did not deserve this treatment, no one does, it is absolutely beyond words.

Owww AnnJac, you are going through enough and we need your strength and morals (I can't think of the word I'm trying to say) we need your mind to be in a good place (not like mine, I can't think of the word).  In other words you are going though enough, we certainly don't need the actions of carless staffs affecting you and something like this certainly. Arrrghhhh!!!!!

Then you mention 'agency' staff, I told one I was going to report him, he replied ..... "you can, I'm at a different hospital from tomorrow!!!" So in reality there is no deterrent. I have always thought in most cases of nursing I don't think you can learn 'to care' - it has to be in you from the start and this is where the problem starts. (please don't get me wrong, I know there are so many good workers out there, its jus the bad ones seem to turn up at the most trying of times).

I am sorry AnnJac, you are going to have to tell them, or get it wrote down on a board, that they can read, maybe have bullet points of 'do's and don'ts".

I wonder if anyone on here knows if you can refuse the hoist and if so, can they manually lift you/hoch you from bed to commode or into a day chair?? 

It is good to read about the you knowing someone working there, this might help, especially if they know someone is looking out for you.

I've had a thought is 'plasma exchange' the same as 'stem cell' - I am wondering if this is an option, also as, I think it was Seaspirit that said a few days ago, to look into treatments around the county and also Europe and USA - only I know and have heard different treatments are available in different places and the NHS will fund some of these - it is worth a look into.

Thinking of you sweetheart, I hope the rest of the weekend is better, tell them Friday the 13th was yesterday arrrghhhh.

Sending love and hugs xxxxx