It seems I'm a patient now!

  • 12332 replies
  • 341 subscribers
  • 2463758 views

But not a very patient one! 

I've at least got a diagnosis, it's invasive ductal cancer grade 2, but still small, oestrogen receptive but looks as if I might get away with the lymph nodes....and maybe not too much treatment afterwards? 

Complex plan, but to begin with, a sentinel node (plus another one or so) removal as day surgery, (a nuclear medicine visit first to get 'the jab' for them to trace) then a gap while that,  plus the HER result come back, then because of my previous surgeries for cysts and the fact one resulted in a massive haematoma, therefore scar tissue, I will have a complete mastectomy with an implant. That will be immediately after Easter. 

By finding out as much as possible beforehand, the surgeon hopes to prevent too many operations. Obviously I will then need Tamoxifen or similar, so will appreciate helpful advice about that. 

But I'd be interested on anyone's 'take' on her plan. I feel reassured that she took time with me, and the BC nurse afterwards spent a good while too. 

Hugs xxx

  • Memo to self; when feeling stressed and a bit unhappy, DO NOT watch ‘ The Railway Children’…..eyes are all leaky! 

    Hugs xxx

    Moomy

  • Just saw this, too;

    A love letter from those who have passed on…

    Take the love you have for me and radiate it outwards, allowing it to touch and impact others.

    Take the memory you have of me and use it as a source of inspiration to live fully, meaningfully, and intentionally.

    Take the image you have of me in your mind and allow it to fuel you to take action.

    Seize the day and be reminded of what is most important in life.

    Take the care you have for me and let it remind you to care for yourself fully and shower yourself with your own love.

    And take the pain and grief you feel following my loss and alchemize it into love, compassion, and beauty.

    Build a castle from the wreckage of my passing and allow it to unlock your greatness and potential and empower you to become more than you ever thought you were capable of being.

    Know that I can never truly leave you and will always remain beside you, watching over you in spirit.

    Know that the love I have for you lives on
    through the connections you form, the kindness and compassion you share, and the future relationships and friendships you cultivate.

    Until we are one day reunited, I will remain with you through the storms and chaos of life.

    I am always beside you, walking with you, laughing with you, crying with you, and smiling with you.

    I am proud of you for being strong.

    I am proud of you for being brave.

    And I am proud of you for being you.

    Words by Tahlia Hunter

    Artwork by Márfy Art, Gabriella Márfy

    hugs xxx

    Moomy

  • I’m thankful that sons have it close together as at least they can be together, bless them, I felt for them having to isolate. Poor Stanley-dog would have been feeling very odd. Son in law says he can’t believe he has it as he still has no symptoms at all. They’ve both walked Stanley today, keeping distance and masking. At least it’s not like the early days when we weren’t allowed out at all if we’d got Covid. 

    It does mean we will need to postpone Christmas, I think. Ah well, there was one year after daughters bone marrow transplant when we were all unwell at differing times, and didn’t dare meet up in case of infecting her with something, we eventually had ‘Christmas’ in the February! 

    Hugs xxx

    Moomy

  • So sorry you are having to postpone the family get together for Christmas. Judging by the number of people who had to cancel last minute coming to my OH's 60th birthday party on Saturday (30  people) most of them because of this horrible cold and cough that is going round, you might mot be the only one postponing festivities. Quite a few who came to the party were unwell anyway and I have been feeling decidedly unwell myself today so I think I have caught it and will miss Christmas. I have been ill virtually every Christmas my whole life!

    We did manage to have a lovely party though and I am so grateful to those who came and made it such a special occasion.

  • Interestingly I had some extra back pain Monday and yesterday, I think due to stress, as once I knew that both lads were feeling ok and no extra problems, and I’d done some exercises, it’s eased off. Hmmmm, the mind does go some way to controlling the body! 

    another rough night though, I’m getting a lot of early waking around 4 or 5  (trip to the loo) and then being unable to get back to sleep properly, I lie awake and doze a bit. 

    Will test again today (tested negative yesterday, had a hair appointment and wanted to be sure, I masked telling her I’d been at a big meeting) 

    Hugs xxx

    Moomy

  • Moomy I have been waking at 4am as well. I think a lorry or an aeroplane must be going past as itbis consistently 4am. I am in so much pain when I wake that even with paracetamol I can't get back off to sleep again. As I am only nodding off around 1 am I am getting 3 hours sleep a night. Then I nod off on the sofa during the day! Invited a good thing I have taken a few days holiday!

    I have nothing I have to do today except wrap parcels and finish sewing my grandson's quilt and the wall hanging. So a peaceful day planned.

    I collected my secret santa gift from a colleague who lives in the next village as I wasn't in work yesterday. I feel very spoilt receiving 4 little votive candles with beautiful scents and a large mug with socks and a sachet of hot chocolate in. 

    My son did not fair so well with his, receiving 4 cans of Monster and 3 protein bars. There was a £10 limit to stop people spending too much but apparently most people spent way over that foolishly. My son spent £30 which apparently was about the average. I spent £10 but my son's gift only came to £6 so he felt hard done by. One crazy lad spent £120! More money than sense!!

  • I'm not sleeping well either. I've put it down mostly to coming off the migraine medication which makes me sleep- I couldn't deal with the side effects of that medication as well as Letrozole. I had a nose bleed yesterday - I've not had one since I stopped periods so I'm wondering if it is the Letrozole! 

  • Letrozole can raise your blood pressure so that could perhaps explain the nosebleed. Perhaps if it happens again, just ask your gp to check your bp

  • Still testing negative here. Son says their positive lines were strong today. 

    Hugs xxx

    Moomy