AWAKE.........

Flossie25 Glad your OH home again and acclimatising. I always found it took me longer than OH. To acclimatise and he was never away two month  

BIL still in after third admittance will stay in til they remove Trachea again . They had to put Trachea in again as anaesthetist can't get tube down throat due to swelling from first op . He seems to be coping well physically and mentally . He just needs to get all the blips sorted out so he can gain strength and recover . 

Glad OH is home and acclimatising, Flossie25, this autumn weather should hopefully help. 

Hope BiL improves swiftly, Northerner, hard not being able to be without trachy tube.

Ive had a carer questionnaire to fill in by local council and have been scathing in my replies. 

Hubs doing ok and coped with meds and his morning wash, infection seems to still be settling, though antibiotic tablets finished, just the cream which I will still apply for a few days yet. 

The sun has got his hat on, thankfully as I’ve got washing out!

Hugs xxx

moomy even with DLA you should be registered as carer . My Daughter is registered as unpaid carer for her partner who has PTSD he is also  deaf due to serving in army . In lockdown she had to take over one of his mental health team  calls . They then got council to contact her re carer . She is unpaid but as council told her there are benefits . They sent her a cheque to use as a treat for self .also gets into cinema and NT houses free  as his accompanying carer . 

You most prob will get care allowance for self ( pain in spine ) when financial side changes if you do daughter or son could register as your carer 

Also do keep looking and applying for pension credit as even if you granted one pence it leads to other benefits . You are doing right it thinking about these things now it's healthier for you rather than dwelling on the grief you are feeling . Hubs would approve I'm sure 

BIL hoping Trachea out tomorrow then after a week they might cut down the Nasal feed to 8 hours again rather than 16 

take care 

Good advice.  I'm a carer for my hubby since his accident .  I claim carers allowance - a pittance at £62 but it gives me NI credits which I need fir my state pension as I was in LA pension scheme and therefore contracted out most of my working life ( paid a slightly lower rate of NI) so although I worked for 40 years I still needed 5 more years to get full state pension.  When my mother died a friend who worked in DWP told me to see if my father qualified for income support (it was 1988) as just 1p opened up other benefits like free prescriptions, glasses and reduced poll tax!!!   My father had 23p income support but saved his annual prescription certificate and a few other bits.  My father been self employed his whole life and had no private pension.  He had haulage & scrap business but had to surrender his HGV licence 3 years earlier due to heart attack.  He continued working but when my mother died he lost heart in it.   My brother went to work with him and we will be forever grateful that he made sure my father had money without denting his pride for the two years he was a widow. He was was too young for state pension so had no income.  My brother, with his son has made a huge, well deserved success of the business over last 30+ years.   His kindness to my father though still remembered. 

Margaret thinking of your BIL

Ladies - I loved this https://vm.tiktok.com/ZM8R2c6fq/. Women not shy of their post cancer bodies. 

Night night dear Fruit Loops, sleep well and stay safe

plenty of sleepy fairy dust for all whovwish

hugs xxx

Hello! Not been on for a few days so have just caught up on everyone’s lovely posts about what this thread has meant to them, really touching. For me this thread was acceptance and not feeling alone or scared, very special. It’s a great mix of ‘old hands’ and newly ‘in need’ that you just don’t seem to get anywhere else. Well I’m the ultimate fraud of a fruit loop at the moment as I can’t stay awake!!! I’ve found, other than on steroid days when obviously you can’t sleep that I’m exhausted all of the time, this docetaxel has really knocked me out and I’m feeling the fatigue. Have had a quiet weekend with my daughter, much needed and trying to enjoy my ‘good week’ but today my eyes are streaming, I’m covered in spots and feel quite nauseous hopefully these things will be short lived! The fairy dust is definitely working for me, lots of love to you all x

Hi Anna12345 daft as it sounds have you tried "dry eye drops " my eyes troubled me during chemo and for a while after . When I asked an optician I was told dry eye can cause eyes to waterI bought some drops and they did help .Mentioned it to unit and they provided me with some as it's a usual SE . 

Might be worth a try . 

I was also recommended to use a warm flannel across my eyes….I did have dry eyes during and for many years after chemo. Some optrex eye spray helped as well as a hot compress….when your eyelashes are growing this can also cause irritation….

Hi All . My name is Penelope and I follow the links on here . Sometimes not sure where to put comments or replies but see how sharing the stories we have helps so determined to persevere . 
To be honest I’m struggling tonight . Having my RT planning tomorrow at Guys . Had lumpectomy surgery on both breasts 3 and a half weeks ago with sentinels node on both sides removed ( came back clear , yippee ) and a clearance . It’s just I’m still in a lot of pain , had a drain done last week but it didn’t relieve that much .

Just thought I would reach out . Worried how I will cope with RT if my breast still feel so sore and burning sensation .Trying to stay positive . 
Peace

Penelope 

Oh and I use dry eye drops anyway as got that issue in the menopause . I think it works xx