AWAKE.........

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  • I totally agree 

    Debx
  • FormerMember
    FormerMember in reply to Dab

    The Naughty Chair is no more....  Hugging

  • Hi  I'm still here though more a lurker !  You should be proud of the amazing strength this thread creates for ladies old and new.  There's always a place here for you and you'll always be needed. I know when I joined i was desperate to connect with longer term members to give me hope that mentally i could do this   . Sending you hugs for being there xx

  • Dearest 

     has already burned your naughty chair, don’t head to the naughty step as there are too many going to get on it from Durdle Door in Dorset (I guess you saw the pic?) 

    we all love you for starting this thread and for welcoming new fruit loops (me included and I suspect I’m loopier than most!) and ensuring LP gets to as many appointments as he can fly to! You keep a check on each and every one of us, and yes it’s really so sad when we lose our friends, but please remember what a huge number you and this thread have helped over the time it’s been going!

    sending you (and all fruit loops, whether on or off site) a mahooosive hug with my love xxx

    Moomy

  • FormerMember
    FormerMember in reply to LondonLass

    Hi LondonLass (Sal)

    I was also getting concerned that we hadn't heard from you for a few days, but I was  so very pleased to see you had put a post on here this morning.

    I have been a community champ for a little time now, but due to my husband's deteriorating health I needed to take a break.  It was a hard decision for me to make and somehow I felt guilty.  Supporting others is sometimes hard, and it can take up a lot of your time, but having a break is a real necessity sometimes.  I have come back to the community feeling refreshed and although I'd been away for best part of a year it was so good to see familiar names (who I feel are "unseen" friends) although it is taking me a little time to catch up with all the new members I'm coming across on a daly basis.

    As you probably know I'm from the Bowel Group, but when I was going through a really bad patch and couldn't sleep at night I came across this wonderful group and it really helped me get through that bad patch.  It is also helping me get through this crisis as I'm living alone (albeit for Taffy Cat) and self isolating.  It makes me laugh, it makes me feel sad and I have cried at times, and I really feel for everyone going through treatment, who may have their treatment on hold or are unwell at the moment.  

    What I am trying to say Sal is that sometimes we all need to take a little break from time to time and no one on here will blame you -  we all love you too much for that.   We are here to support each other and perhaps you need a little more support from us at the moment.

    I totally agreed that when we meet others from this forum or from other groups and when they are no longer with us it is really hard to deal with.  One young friend I made at my local support centre was kind and helped me when I was very frightened about starting chemo.   I miss and think of her often. Living locally we used to meet up for lunch etc, and I just  couldn't get over her death for quite some time.  I got to know her partner and met her parents at her funeral.  Her mum was only a few years older than me which made me think of my own daughters.   My friend hated driving along the M5 and particularly that part near Bristol, where one side of the motorway is higher than the other.  I regularly travel along the M5 and when I reach that stretch of road I shout "hello" to her and tell her that I'm thinking of her and missing her so much. No matter how old we are, what our backgrounds are or what our diagnosis was/is, we have one big thing in common and we understand and support each other in a way that  no one else can.

    Take care Sal, I know LP is being there for you.

    Lynne

  • totally understand your feelings, but no apology needed. has burnt the naughty chair! You are vrry much wanted and needed at the centre of this wonderful thread, but you have taught us well and we are able to keep it going until you feel fit to be with us again. Sorry you are feeling so marginalised. Inevitable if you have secondary BC . Thsnk you do much for your support xxxxx.

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • FormerMember
    FormerMember in reply to seaspirit44

    Hello ladies

    I'm sorry that two of our fruit loops are in hospital big cuddles.

    Sal that was not waffle Ernst was beautifully said and I too were concerned about you because you not been round 

    Certainly no social distancing in that beach photograph I was at walk yesterday as per as live in rural village got next village and opposite some.houses there was 4 doesnt seem much burning.my village parked up..ffs

    Well I got got letter from surgeon who carried out my kyroplasty and my app which was 16th june is still that date but now telephone call and my oncologist appointment is 22nd july by telephone..I seriously hope I'm not waiting that long to get my scan and get results though she said she may change it depending on scan results.but I hope it doesn't take that.long my anxiety will totally composted by then there is a day not day which doesn't go by that it enters my head that my.tumours gone.up and doesn't help.my lump in.my breast has got bigger I'm sorry.for.my ranting

    How.we all xxxx

  • Well, that was a bit of catching up to do!!

    sorry to hear you're having a rough time. Hugs for you all!!

    there is never a time you need to be on any naughty anything!! This thread is testament to how much you care, and to how much you have helped and supported so many!! 

    I've been getting far too used to keeping my own company. I can't join in Zoom church meetings, as I lip read or use subtitles. And small pictures I can't see well enough to understand what is being said. Supposed to be shielding, but have been going to the shops etc as hubby working. Fortunately I've tended to be comfortable on my own over the years. My problem now is, by the end of hubby's weekend I'm fed up with him.Joy Pointless telling him anything as he forgets straight away. If he listened in the first place that is Joy 

    How am I going to cope going back to work? There will be too many people Joy

    Has anyone had a play with the new facebook avatar thingy? It's great fun!!

    Hugs xx

    Karen