Whole head radiatin

FormerMember
FormerMember
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My appointment went well - but could have been better!

apparently they have seen at least 6 area in the brain where the cancer is so the aterostaric option is not an option! To get the cancer back under control I will be given whole head radiation. I wl go and get head mask made on Tuesday and starting Thursday will have 5 days of radiation. I am really really anxious. Side effects will likely be fatigue and my shirt term memory will also be affted (it's already not great)

has anyone got any tips/advice for me? Gina I know you have been through this.

Prayers and positivity to you all x

D x

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  • Sorry u can't have stereotactic radiotherapy.

    Yes, Gina' s probably  the go-to person re this.

    Will b thinking of u next week x

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • Hi dianaA, how did it go yesterday with the treatment?

    Just realised I'm a week out, due to Bank Hol. Sorry!

    At least it means treatment should b all done n dusted.

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember in reply to buttercup01

    Hi, yes done and dusted but am feeling quite rough now - headache and have been feeling sick, thrown up a couple of times - bit sure if I'd feel better to eat but don't really fancy anything and theNauseated faceimes I have eaten its all came back up!!Nauseated face

    Any idea how long I can expect to feel like this? ? I have things to do and places to be but just cannot get myself feeling well enough to do anything apart from lie in my bed!!

    advise very welcime

    diana x

  • U may feel sick because you're hungry, rather than due to the treatment. Have u tried things like dry toast or ginger biscuits? The latter might help settle your stomach.

    The headache could b dehydration of course.

    Did they not give u any advice after the whole head radiation? The only person I know who's had it is Gina. I wonder whether it's worth posting in the main Brain tumours group or on" Ask a  Nurse"? Or ringing the helpline on 0808  808 0000

    SorryI can't b of more use ..

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember in reply to buttercup01

    Thank you for replying - I've started to feel a bit better thank goodness - I hate feeling sick!

    managed to eat strawberries and evaporated milk - a bit weird but was what I fancied and kept it down too!  Also got a burst of energy and took the dog for a longer than usual walk, was very nice. Ready for sleep again now 

    here's to a better day tomorrow - love and hugs and positive thoughts to you all

    dianax

  • A little bit of what u fancy does u good - as they used to say.

    Trouble with bursts of energy, u sometimes get more knackered later. I keep trying to pace myself coz if I do too much too many days in a row I'm well tired after.

    That said, it's good while it lasts, doing things at a " normal" rate throughout the week lol 

    Hope you're having a better day today?

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember in reply to buttercup01

    Oh thank you so much - do feel much much better today - still really tired but have managed to keep food down! Took doggie for a short walk this evening - hoping tomorrow will be a good day too!  I Grinningally must remember to pace myself I'm off to proms at Hyde park next Saturday - looking forward to this so much so will be reserving. My energy for then Grinning Barry manilow is performing! I know he isn't everyone's cup of tea but he is a legend Laughing I'm very excited!

    hugs to you

    dianax

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Diana

    Glad to hear the treatment is all done, though not to hear about the stomach ache and throwing up. This lasted about two weeks after, rather than just the week I was told.

    I was told this was because the full brain could cause swelling of the tumours which should settle.

    Tiredness like you I just wanted to lie in my bed, I was told it would peak about 4 weeks after than energy would come back.

    If you're still being sick anti sickness meds are a life saver.

    Hope you continue to feel better. Got to feel ready to sway along to Barry Manilow Grinning