Hi, I've just joined group for any advice anyone can give. Hubby is on end of life care from Melanoma with secondary lung, liver and brain mets. One side of his face dropped last week so he's struggling a lot and no longer eating or drinking very much and can no longer speak apart from "no". He is on oxycodone and sleeping a lot but when he's awake he's very very tearful and distressed, shouting out no no no which is obviously heart breaking for myself and my sons who are helping me care for him at home. Has anybody else experienced this. Sometimes he let's me hold his hand and sometimes he doesn't want to be touched. He also needs total peace and quiet around him or he gets very angry and frustrated.
Hi Indie
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
If you don't get any replies here, it might be an idea to also join the supporting someone with incurable cancer group where you can share your feelings as well as talk about practical issues.
If this is something that you'd like to do, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Indie
I have witnessed a relative going through the end of life stage, and know how distressing it is for all concerned. My relative didn’t have brain nets but I understand they can bring all kinds of different symptoms depending on where they are in the brain. They are probably the reason for his limited speech and any personality changes you are witnessing. Please be assured it’s not that he no longer cares about you all, it’s the cancer talking. Have you all got enough support? Do consider contacting our helpline, the number is below.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
I am a Macmillan volunteer.
I have metastatic Triple Negative Breast Cancer, in remission
