Hi everyone, I'm new here. My dad was diagnosed with grade 3 anaplastic oligodendroglioma in summer 2018. He had radiotherapy and oral chemo, and because of the genetic signature of the tumour the doctors felt able to make a prognosis of a decade or...
I'll be 82 in October. Although brought up in the UK (Torquay) I spent several years in Germany (where I'm now living in a town near Dueren) and many years in Texas and Florida (USA). In mid July 2024 in the evening while eating supper my wife Karin suddenly...
I had an emergency operation to remove this Tumour a year ago on 2 April 2025. I had to have a 30-day radiotherapy treatment last June & July and then a MRI every 3 months to monitor the residual tumour threads still remaining. Sadly, during the months...
Hello community. I'm a 37 year old mum of a 27month old boy and just been diagnosed with a glioblastoma multiforme. I've had a debulking surgery at St George's hospital and it went "well" I'm due to start Radiotherapy and chemo on 1st November. ...
My mum had her scan on Mother's Day and the next day she was told the news. She tried to shield us from the truth but on the day of her operation the surgeon let slip what he thought it was, Grade 4 Gliomas but we'll know more when we get the biopsy results...
Hi, these stories sound very similar to mine. I’m 33yo, I had a few seizures/ grand mal seizure 3 months ago. Suspected grade 2 IDH astrocytoma size of small plum on my left lobe attached to my speech nerve. Im waiting for an awake craniotomy- no date...
Hi everybody. I am 24 M, and i had a brain tumor operation on the 20th of january. So almost little more than 2 months have passed and everything came back to normal. My eyesight which was blurry after the operation, my overall balance got better but...
Hello I am new here. My father is very poorly with cancer. He had the tumour removed last year and we were given the devastating news that it was cancer. He was discharged and then a most awful journey began was his wound became infected and he had...
My husband is under the care of the Palliative team currently in week 16 since diagnosis. He is asleep most of the time but started seeing people cats and dogs occasionally but now the house has people in every room. All day yesterday he was talking as...
Hello all, My husband was diagnosed with this a month ago. Before that we only knew it was a tumour. Unfortunately he has not been given any treatment apart from steroids. Surgery not possible and no radio or chemotherapy will be effective. I have lots...
