Hallucinations

Hi, I wonder if your husband’s tumour is in the front lobe? My dad’s was, and he hallucinated quite a bit. He once tried to climb out of the window, as he thought he was escaping from somewhere. But generally they were happy nostalgic hallucinations like your husband’s. 

My tumour is in the left temporal lobe so I only hallucinated once during my first seizure. When it happened, I was working on an old photograph, and I hallucinated being in the photo (sadly it was of a Liberal Party Conference in the 70s, and very dull!) 

I’m sending a big hug to you and your husband ️ ️

Hi Lindy

so sorry to hear about all that's going on. Confusion can be quite normal in my experience of supporting my late husband but he never hallucinated as far as I recall. Everyone is different and it will most likely be linked to the area of the brain that is being impacted. 

If the hallucinations/confusion is distressing your husband I'd encourage  you to report this to the nurses as they may be able to prescribe something to help. In G's case he was very agitated for the last couple of months of his journey but the addition of a low dose of Lorazepam took care of that.

sending you love and light and hugs and strength

Wee Me xx

Thanks Wee Me I will have a word with our Palliative team regarding Loazepam.  
I’m not sure if it’s ‘normal’ but it feels like instant dementia has hit him.  He keeps trying to to use  the phone to control the telly.  People are supposed to be coming to collect him to take him home. He doesn’t think he is in his house.  The other day he was trying to get out the porch door which we keep locked with his coat on saying he couldn’t get out he had a bus to catch home !!  and if the poor man needed anymore he has seizures when he is sleeping and that is so distressing to see.  I seem to spend a lot of time crying. Sorry Wee Me I seem to have loaded u up I only meant to say thanks

big  xx

Oh, Lindy, offload all you need to. That's what this community is here for. We all get it. I've been there with G. As a family we had over 3 years of a GBM journey so I understand where you are coming from.

Always here if you need to vent.

Sending you love, light, patience and hugs

Wee Me xxx

Hi my daughter spoke with the team yesterday and they said they will come out today Friday 13th !!! What a date huh !!! They told her this is the halfway stage. I’m awake again as I feel scared to sleep too long i’m dozing on a recliner rather than go to bed as I’m near the front door !!! My husband has passed a couple of times in the last few hours on way to kitchen saying he is hungry then goes back to bed.  He has asked me last walk through how long the people in the living room are staying I said I wasn’t sure he just said oh and went to bed !!!  I’m so relieved that he didn’t think they were here to take him home . Sorry rambling again Wee Me     X

Hi Leeluu thank you for your response.   My husband’s tumour is the same as yours in Left temporal lobe.  This was a couple of weeks of one or two a day now now dozens of them plus the animals!!!!!!!      Idid wonder May I ask whereabouts on your journey you are? 

ramble away. It's allowed. This is such a rollercoaster of emotions to navigate.

love n hugs

Wee Me xx