I had an emergency operation to remove this Tumour a year ago on 2 April 2025. I had to have a 30-day radiotherapy treatment last June & July and then a MRI every 3 months to monitor the residual tumour threads still remaining. Sadly, during the months of Nov 25 - Feb 26, this 'residual' tumour has now doubled in size and is re-growing and I am due to meet the neuro-surgeon shortly to discuss a further operation. I was wondering if anyone has any experience of a secondary operation of this type?
HI GaryG298207
a warm welcome to the online community. Sorry to hear about all that's been going on.
My own person experience lies in supporting my late husband through his three year Stage 4 primary brain tumour journey. That said, the members of this group have a divers range of personal experience so I am hopeful that someone with relevant experience will be along shortly.
This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now though I'm sending you a huge virtual hug and lots of positive energy.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
