Hi all, I hope you are all well. Sorry for the morbidity, my son was diagnosed with grade 3 anaplastic oligodendroglioma in 2014, however, the tumours could of well been present before. My question is about end of life and timelines. I know each individual...
Hello I'm new on here, this is all so overwhelming right now. My mother in law was diagnosed with stage 4 neuroblastoma on Thursday. Monday she was told she has 4 to 6 months maximum to live. We're all so lost, don't know where to turn. We feel like cats...
Life the last few months have been tough. So after the usual small seizure activities, which I'm completely aware of, things has stepped up. I was in my front garden watering the plants with the hose pipe, which wasn't on, just standing staring into...
Hi there, Just for background I was diagnosed with a grade 3 Oligodendroglioma back in 2021. I had surgery, 6 weeks of radiotherapy, and now I’m treating myself. But just wondered how many others here have experienced allergies issue since there diagnosis...
hello everybody, im new to the group and english is not my first language, so sorry for the mistakes. i've been diagnosed of a ganglioglioma (low grade glioma) in my right mesial temporal lobe. it was discovered by errors, because i bugged my doctor for...
Im waiting on a date for my radio the a 'break' then chemo. The only IV form is vincristine from PCV (a combination of the chemotherapy drugs procarbazine, lomustine (CCNU) and vincristine.) It mentions hair loss so I know this is possible? Has anyone...
Hello all. After finishing my 6 weeks initial treatment plan and having a 4 week break, I'm getting closer to having my next MRI. Followed by an appointment with my consultant to discuss results. This is booked in for the 14th/15th March, so not long...
I had two seizures sept '23 which lead to my diagnosis of grade 2 oligodendroglioma, and since then have been on a small dose of levetiracetam. Post op I had no sign of seizure activity and was focusing on physical rehab. Out of the blue (like everything...
I still find it sad that blogs and stories are just one or two messages and then they stop. It’d be nice to know how people have gotten on or how they feel/cope. I understand people can think it’s pointless but it can help to vent and remember your journey...
Sunday (24/3) is exactly 12 months since surgery for an adenocarcinoma which had grown in my occipital lobe, which for those that don't know is the part of the brain that processes visual information. My primary was bowel cancer and the NHS has been taking...
