Hi all, Thank you for all the comments on my previous post - it’s greatly appreciated! I’m half way through my radiotherapy and first round of chemo and luckily I’ve been blessed with hardly any side effects other than a bit of nausea and getting...
Hey all I’m 26 and have just been diagnosed with astrocytoma, waiting to start radiotherapy and chemo. I’ve told all my friends and family now, have reassured them and told them that I’m still me and I don’t want anything to change. I’m a pretty sociable...
Me and my family are doing the mighty hike in the lakes on the 14th of June! This charity/community has done and continues to do so much for me and my family and I can't wait to give back we have already done a fundraiser coffee morning which raised over...
Bit of back ground.. my wife was diagnosed with stage 4 glioblastoma in December after a tumor was removed on her left frontal lobe. She is doing really well pretty much running the house again and I'm back at work. She smashed the first round of intensive...
Hi all, just been recently diagnosed with a my third brain tumour. Original pathology was deemed although not 100% but named Angiomatoid fibrous Histiocytoma . this was at 13 and told to use scanning and monitor but it came back at 19( full resection...
A friend of mine, who I met through my cancer journey, has the same staged astrocytoma as I do. However she has been told that hers is inoperable due to its position and location. She has never had a craniotomy to remove the tumour, only a biopsy. She...
Hello My darling husband R has been diagnosed with Glioblastoma IDH WIldtype Grade 4, we start chemo/Radio next week for 6 weeks 5 days a week, not sure it has sunk in yet for hubby he’s very quiet, me I’m a mess scared for the future and worried about...
Hi, my brother has a brain tumour. He’s doing so well and he’s being called a long term survivor. While this is great I’m looking for advice on how to deal with a new development which is inappropriate sexual behaviour. Family members feel assaulted when...
My wonderful husband has now passed after a courageous fight over 21 months. There is no relief , no idea what to do now or how to continue without him, such a waste of life. This pain is real. My heart goes out to all who are living with this , they...
Hi all, Saturday was a hard day, I knew my mam wasn't right she hadn't been right for a few days, she looked flushed she was in pain, I spoke to the nurse, she said she ok, I blew I says she's not she's in pain I know her better than anyone. I says...
