Hello, Has anyone on this forum with a brain tumour had a so called “liquid biopsy” (eg a provider in the U.K. is guardant offering their 360 test using blood samples). Has anyone got any experience of this and If so was relevant dna found and was their...
Hi all, Well, today I finally go into Birmingham’s Queen Elizabeth Hospital for surgery to remove my newly diagnosed (though was misdiagnosed as a GBM back in 2012) Anaplastic Oligodendroglioma which has had a recent recurrence. Although I know it...
MIL was diagnosed with terminal brain cancer in October, her decline has been rapid - she sleeps most of the day and seems to be up all night. She is confused 95% of the time and the deterioration seems quite rapid. I spoke to macmillan support tonight...
Hi There, Has anyone had any experience of how long it takes to get your driving licence back following diagnosis of a brain tumour? I was diagnosed in May of this year and despite a successful. (surgeon's words) operation to remove the tumour was then...
Hi everyone, just wondering if anyone else has had an endoscopic third ventricularostomy for hydrocephalus because of a tumour. I had surgery on the 29th nov which was successful but some days i feel like i did when artended a&e like slight pressure,...
On the 29th nov i went to A&E reguarding possible stroke symptoms as i suffered from a migraine which gives me numbness and visual disturbances and have done for the last 3 to 4 years. This particular migraine didnt seem to subside which was actually...
Hi hope everyone is well I am awaiting neurology appointment on 23rd this month and a possible lumbar puncture , around 6 weeks ago I had loss of vision , static vision , zig zags and just complete loss of vision and just felt really wired and out of...
OK - Post craniotomy we will have the big results call on Tuesday. From my notes looks like GBM4 WHat are the best questions to ask ? Read a lot of stuff abut cannibidols (CBG CBD) anything solid out there ? Can MacMIllan or anyone refer an IFA...
We have been on a long journey over the past year. My father's oesophagal cancer is now in his brain, the tumour is fairly big and there is a smaller lesion with lots of oedema.He has no use down his right side and cannot stand or walk without at least...
My son Joshua, 25 was diagnosed with GBM4 christmas eve 2020. He has gone through craniotomy, 6 weeks of chemo-radiotherapy, 6 months of further stronger dose of chemotherapy all with a beaming smile on his face. Even when he must have been in so much...
