I had the following operation on 27th September 2022. extensive adhesiolysis, posterior exanteration including subtotal vaginectomy, reversal of loop ileostomy, appendicectomy, full hysterectomy, end colostomy and V-Y gluetal flap I had a catheter...
I'm on cycle 5 last one for now next week but gosh the fatigue is awful I feel on a high for three days then bang all energy sapped feel like my body won't co operate with my mind. I mentioned it to my oncologist and he said it comes with chemo. I...
So second cycle done yesterday and chuffing nora I’m feeling rough, first cycle hardly nothing, just very mild side effects but second cycle is a whole new ball game, nearing the end of the oxy infusion yesterday my voice changed and got all squeaky,...
My husband was on nivolumab for 8 months but had treatment stopped due to it causing ulcerative colitis. He has been on steroids for the past 8 months and recently he is having a lot of jaw pain to the point it's keeping him up all night in agony it does...
Hello Where/how to start? Its been a really tough 3 weeks culminating in finding out I have rectal cancer with a tumour too big to operate on and that I might have to have everything removed. It was discovered when I went for a colonoscopy and that...
Hi all I was wondering if anyone is on or recently been on just 5FU with folinic acid? I appreciate it seems quite an old style regime these days. I'd love to hear experiences and any lessons to learn from it. Thank you.
Hi everyone, I had my meeting the other day with my surgeon and we discussed potential risks of the surgery. I’m 100% having a temporary illestomy, my cancer is 6cm into my rectum. I had to sign today that if we can’t get the join I would need the APR...
Hello all, Can someone please enlighten me as to how many different treatment options there are as Google isn't helping much... My mum's treatment has showed signs of stopping working for stage 4 bowel cancer but I'm just wondering how many other options...
Hi I am 6 months post op but my bowel movements are still all over the place. I have been recommended fibrogel by the nurse which has settled things down somewhat. Just wondered if anyone else has used it and for how long.
Having full body CT-PET scan today following MRI showing possible spread to liver. Can't find my original post (few days ago), but just wanted to say I'm really grateful to you - Court - and anyone who has responded. I've spent a couple of hours, this...
