Rectal cancer shock

Former Member
Former Member
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Hello

Where/how to start? Its been a really tough 3 weeks culminating in finding out I have rectal cancer with a tumour too big to operate on and that I might have to have everything removed. It was discovered when I went for a colonoscopy and that was only because I’d  discussed possible IBS symptoms during a chat about menopause. The nurse convinced me to have it investigated further just as a precaution. 

Never even crossed my mind that they’d find cancer. After my colonoscopy, he told me they’d taken a biopsy and I’d need an MRI and CT scan and then they’d discuss my case at an MDT. 

My treatment so far has been amazing. After the MDT they told me it looks like it’s broken through and two lymph nodes and my pelvic floor look to be compromised and there’s a shadow on my liver. I’m booked to have an endorectal scan tomorrow. I know he mentioned a PET scan and radio and chemo therapy as son as possible, but it’s a tough waiting game.  

I quite honestly have never been so scared. I told my Dad this weekend and it was so hard being brave as he’s got prostate cancer that’s spread to his bones and he’s not well. My girls are 14 and 20 and have been amazing as is my husband, but I’m terrified they’ll find more cancer and of having to have a stoma as the tumour is so large and very low. Has anyone else been on this journey?

Thank you for reading

  • Im sorry you find yourself in this situation.its hard but try to take one day at a time and dont google.you will scare yourself silly.as for a stoma,they really are ok and save your life.

    Do click on peoples names to read their stories.you will get through this and come out the other side

    Kath

  • Former Member
    Former Member in reply to Katz51

    Thank you Kath. I hope you are well

  • Im fine thanks.do ask anything.nothing is too small or silly honestly.

    Kath

  • Former Member
    Former Member

    So sorry you are having to go through this. We are all here for you if you need to chat. Your family sound amazing which helps. 

  • The last thing you need to be scared about is having a stoma. I have one and it is not the problem it is generally portrayed to be. I did have a difficult first week at home but the stoma nurses sussed the problem and got me a different kind of bag suited to my stoma and I haven’t looked back.