Scan result

FormerMember
FormerMember
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Hello

My consultant rang this afternoon  to say that my scan showed that my cancer is now showing onnmy liver. She said it's still slight at this stage. She wants me to have another blood test in a couple of weeks and then see her in October. My tumour markers are still fairly low. She mentioned taking me off Exemestane and putting me 9n Tamoxifen. I have been on Tamoxifen before after my original diagnosis back in 2010 for 5 years.  She was also talking about oral  chemo at some point. Has anyone else had this?   

I knew it was going to spread at some point but it still hits home that this is going to get me.  Dont really know what I am feeling, scared perhaps, confused and angry right now. This is not how I saw my 60s panning out.  No retirement with my husband, no pension even since they moved the goalposts. I hate, hate this vile condition.

  • The words in my head either are so inadequate for you at this moment or they are not suitable for reading. 

    It is vile and it is relentless.  That dark cloud was always following me since the first time I was diagnosed no matter what anyone said. When I was told that it is back, I wasn’t as prepared as I thought I would be. I still get sudden floods of emotion like you have described. You are probably feeling everything and more. I have punched it in the form of a cushion and squeezed the living daylights out of it on one of my daughter’s stress ball. If I see an elderly couple together I have to look away because I won’t experience that part of life with my husband. 

    I think what I am so badly trying to write is, I can feel your pain with mine. You are not alone. 

    I will keep you in my thoughts and send you caring love and comfort. 

    DiAne x

  • FormerMember
    FormerMember in reply to DiAne550

    Thank you for your words.  Has yours spread at all?  I had to tell my son tonight which was hard. Dont think he wants to think about me not being around.  He needs some time to process it I think.  Told him he had better make the most of me whilst I am around.  My husband is Mr Positive always trying to find the good. Thank goodness I have got it picked up early.  I dread to think if I was waiting  on 6 monthly scans on the NHS where I would be. It's worth having the private insurance.  Oh well, cant  change anything so two choices, sit and mourn or get up and live. I  choose the latter.

  • Yes, it has spread to my liver and treatment has not started because they want to confirm what cancer it is.  My blood results are now hinting at a blood cancer.  Another thyroid .  The last two weeks though my lymph are swollen and increasingly painful.  Today I had to go to GP - bladder sore but no UTI in urine though I have been given antibiotics.  It feels like it is all over by body now.  Diagnosid was delayed about 16 months because medical folk would not listen to my concerns that I had cancer.  

    I am fighting it all the way.  in every way I can.  But I do get scared, sickly panic about what may come next.

    I have good friends who cheer me up and my daughter keeps life normal.

    I have been reading a lot and get encouragement for Jane McLelland"s book.  ah, daughter off to bed so mummy duties now.

    Keep strong and positive. Sounds like you have a wonderful husband and family.

    X

  • Sorry to interrupt, but Diane if you have any questions about thyroid cancer then do shout. 

    That's what I've got, and it is in my bones, hence why I'm a member of this group. 

    Good luck with all the tests! 

    Lass

    Xx

    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • FormerMember
    FormerMember in reply to DiAne550

    Keep strong  as well. Thank God for this site to be able to talk to people who understand.  I live in the north east, whereabouts are you?

  • Hi Lass,

    how was yours picked up. Mine hasn’t yet except by me when I asked for a copy of the last blood results from my GP monitoring thyroid. I had never seen the particular test before. Can’t put my hands on it as in bed with incredibly aching legs and pelvis. Assuming it is the Denosumab I had on Monday. My first.

    Thyroid peroxidase antibody, remembered I took a picture of result. The oncologist did not want to know because she had not requested the test. Told me to go back to GP who didn’t tell me about it a month ago.

    Every pain, ache and sore bit feels like cancer spreading. I am getting up to wee so often in the last 12 hrs. Now my legs are heavy it takes so much effort. Getting to hate the nights when I can’t sleep. I am so exhausted that I haven’t the energy to try my steps to falling asleep. 

    Well, that was a moan and a half. Feels good. Keeping most of it from my family but getting difficult with the extra pain. 

    DiAne x

  • FormerMember
    FormerMember in reply to DiAne550

    I live in Eaglescliffe nr Stockton on Tees. Are you close?  

  • Heya Diane, 

    Thyroid peroxidase antibodies aren't actually used for diagnosing thyroid cancer. However they are used to diagnose thyroid diseases like Graves and Hashimotos. These are autoimmune disorders. 

    Now, if your TPA was raised, it could indicate that you have an autoimmune disorder, which could then explain all of the aches and pains you are feeling. Those are VERY common side effects of thyroid disease. 

    So def get yourself back to your GP to talk about those results and get some more tests done. Because there are things that can be done to make side effects improve if that's what's going on.

    Lass

    Xx

    I have no medical training, everything I post is an opinion or educated guess. It is not medical advice.

  • Thanks Lass,

    it was one of the articles I read that said it could mean thyroid cancer. I have had a cough for years which comes from between the throat to I’m guessing top of bronchial tubes. When ever I mentioned it I would get an X-ray of lungs which would be clear. Though I would say the cough comes from above there. Checked me with the breath flowing and I was always strong if I could get enough out before it triggered a cough. 

    Did you have symptoms?

    DiAne x