Hi all, I’m new on here, I live alone with my 2 dogs, I have 2 grown up kids who are very supportive and who have been through a lot this last few years. I was diagnosed with grade 1 breast cancer (2 small tumours) last year and was told it was early stage ‘bread & butter’ breast cancer which hadn’t spread to lymph nodes. Had a full mastectomy and was fortunate enough to have through work comprehensive cancer cover care ao was able to undergo chemo in private healthcare. The chemo set off sciatica so they did a full spinal mri, followed by CT whigh showed that there was something suspicious on one vertebra with a couple of ‘flecks’ on my pelvic bone. The MDT decided ‘we’ll just treat it as cancer’ but although in a difficult area, close to aorta and spinal cord I insisted they did a biopsy. I needed to know was it cancer or not! 3 weeks on from biopsy yesterday was diagnosed with met bone cancer; spread via blood stream. Whereas one tumour in breast was low amplification HER2+ this tumour in vertebra was HER2+3 so turns out good job biopsy was done, the oncologist said, because now it can be targeted with the correct drugs. So I’m going to be put on Debosumab and Phesgo and monitored every 3 months. Does anyone have a similar story or experienced being on these drugs. I’m concerned that the cancer will pop up somewhere else! I experience discomfort in some joints and not sure whether this is related. I’m quite active and walk every day and attend gym twice a week, do struggle with a bit of fatigue but try to work through it. I’ve had no symptoms of pain etc in part of back where cancer has been found - stumped and shocked by diagnosis and struggling to accept position and thought of living with cancer and what future will hold and for how long. I Work full time, office based although work have been great and I can work from home and I worked through all of my chemo treatment. Sorry for long post just needed to get it out somewhere without burdening friends and family. Any info, experience or thoughts would be much appreciated. Thanks
Hi Liverbird603331fb and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
If you don't get any replies here, it might be an idea to also join the secondary breast cancer group and post there as well.
If this is something that you'd like to do, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
