Hello. Always tired, leg pains waking me up. Anyone else?

Hi Nellie44 

I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

If you don't get any replies here, it might be an idea to also join and post in the secondary breast cancer group as you'll then connect directly with others who have the same type of cancer as you.

If this is something that you'd like to do, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

Hi Nellie,

Sorry your having a bad time, I am the same,not had a full night's sleep in like forever!!

I invested in a reclining chair, which is now my 2nd bed! 

I'm still in the process of trying to get my medication sorted, at the moment I am on gabapentin, morphine tablets,celacoxiib and oramorph for break through pain...at first I was tired a lot however it seems to have gotten a bit better but I am anemic due to low platelets and haemoglobin, I seem to need blood transfusions every 3 weeks at the moment...have you had your bloods done recently??

Sending hugs xx

Lisa m x

Hi Lisa 

Im currently  on liquid morphine, co codamol, naproxen and pragapellin, but went to de on Thursday so im now waiting for morphine tablets and use liquid morphine in between do away with co codamol, so I am waiting to see if it helps! Fingers crossed I have awful pain in my lower back to just fed up with everything at the moment x  god bless you your going through it sweetheart, there's me harping on , hope it all goes well soon for us both x thank you for responding to me 

Nellie x

Aww bless you Nellie,

It's just shit isn't it....you can rant as much as you want hun, 

Co-codamol is awful bungs you up hate it....I realistically know we are never gonna be completely pain free but how exhausting is it..it wears you down...I am 55 and I use a walker with a seat round asda!! Lol at me!!

Have you tried a heated seat pad? I find it good plus you can take it to bed and put it under your back...

Lisa m xx

Hi I am 57 , oh god you name it heated pillow heated blanket not heard of heated pad x my dr has referred me for help I need a perching chair and a high cushion to sit in whist watching tv ect ,I have phratic arthritis (not spelt right lol) in my spine too and recently been told arthritis in my shoulders, knees, feet and toes (I feel a song coming ) x feel like I'm falling apart all of a sudden x

Bloody hell arthritis as well that's all you need!! This getting old crack is not fun at all!! Add menopause in there too, we certainly don't have it easy....

Yeah the heat pad is great,I get a lot of leg pain and sometimes one leg worse than other and I can wrap the pad around my leg...I to have the pillow..lol

Have you had any physio input?

I am waiting on hydrotherapy and they also got me a perching chair for kitchen through OT...

Hope wherever you are today you have some nice weather, bit of sun always lifts you i think..

Lisa m x

Hi Lisa 

yep you are correct getting old is awful! Should be in my prime more like a 90 year old definitely look in to getting one of those pads . Going to joint clinic Tuesday so hopefully get some sort of exercises to do, I need more is a perching stool as my kitchen is a small gally type x you too hope you have plenty of sun where you are too I'm in Merseyside x

How did the joint clinic go??

I started target radiotherapy this week, everyday for five days hopefully help with the pain....x

Lisa m x

Morning Lisa , 

oh I hope it works for you Lisa ! I had radiotherapy with my breast cancer. Got on ok gave me exercises to do for my legs and back ( I think he thinks I'm 21 ) but I'll do it also said to do water aerobic, so once my appointments calm down I'll check with my local MacMillan. Good luck this week I'll be thinking of you. Thank you for keeping in touch means a lot when you see the same name pop up x

Morning!! Lovely day again (I'm in chorley)

Glad it went ok, I think water exercises will be good.

Yes I had radiotherapy with my 1st dance with breast cancer.

Not gonna lie tho the pains I was getting last night were off the chart, at least I'm only having a weeks worth..

How you feeling today? Have you any plans? Whatever you do enjoy!

Lisa m xxx