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Hello everyone This post is a little tongue-in-cheek but I'm interested in the answers. As an uncircumcised male I'm never sure, when having BCG or a cystoscopy, whether it's my job to peel back my foreskin or that of the practitioner. What do other...
Hi I thought I would share my recent experience as it might help someone else in a similar position. I had a recent consultation with a local surgeon as I’m anticipating having my bladder removed (RC) after receiving chemo & immuno for 3 months (niagara...
My mum is due to have a rigid cystoscopy procedure next week after a CT scan and flexi found a dodgy looking lesion in her bladder. She is in so much pain all around her pelvis and back, and lots of bleeding / clots. No one has sat down and had a conversation...
It’s 6 years today since my cystectomy.It’s hard to believe it’s been that long so much has happened.Thanks to the wonderful surgical urologists in Bristol and to this supportive group.It feels good to still be cancer free.Love Jane xx
Evening all, a rant if I May….sorry in advance…. didnt get to sleep until 4am this morning, no idea why….was just wide awake… tonight the anxiety is trying to break me down but I’m holding on…. feel like I’ve gone backwards today, peeing is starting...
I was fast tracked by GP in July due to alarming bone ALP levels together with very high CA 15 3 protein markers, indicating possible metastatic breast cancer (original diagnosis 2012). Bone scan revealed extensive abnormalities in femur pelvis and lumbar...
6 weeks of mitomycin starting on 27th August at 12 noon. Yey lucky me
Hello everyone Just got through 1st maintainace course. 7,8,9,. Few ups and downs. I've also had the cystoscopy camera on my birthday. Best birthday present ever to be told your all clear and staff sing happy birthday to you. Hope everyone's doing...
Morning everyone, I got back from a little break to Jersey on Saturday. Its such a lovely Island and helped keep my off today. Its been 6 months since I last had treatment , so i am very anxious about a recurrence. Please god it will be clear and I can...
Hello, My husband had his bladder and prostate removed 2 weeks ago (15th Sept). His cancer was found to be ‘high grade undifferentiated tumour with poorly differentiated carcinoma with areas of sarcomatoid and possible focal neuroendocrine differentiation...
