My mum is due to have a rigid cystoscopy procedure next week after a CT scan and flexi found a dodgy looking lesion in her bladder. She is in so much pain all around her pelvis and back, and lots of bleeding / clots.
No one has sat down and had a conversation with us about the fact that it is probably cancer. No one has said that word, however the doc who did her flexi sent a really cryptic (medical jargon) letter to her GP which said it looks like a TCC, which from googling I learned is bladder cancer. I wish they would just be up front about it and communicate better.
I have a million questions about it and no one to ask, my brain keeps running through all the possible scenarios especially the worst case. I am worried with the amount of pain she is in that it may be more invasive or something.
Any suggestions for getting through this period when everything is so uncertain? She seems really ill and weak and I feel so powerless to help her. I am her only child and only carer.
Hello Dottie22af73 and welcome to this supportive group but sorry to hear about how mum is feeling. They cannot tell you a lot at the moment as they don't know. A flexi is a visual inspection and nothing definite will be known until after the TURBT procedure and biopsy results. GPs don't usually get involved if it turns out to be BC but can help with pain management. A TURBT is not a major operation in the great scheme of things. Mum can be out the same day but prepare for an overnight in case she goes down late. In the meantime it is important for mum to drink plenty of water regularly to flush any blood and debris out to prevent blockages. If she finds it hard drinking water then others here recommend a touch of lemon barley to help get it down. Plenty of us her to answer any questions or to sound off on. Best wishes.
