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Hi all Just had my first 1 of 2 cystoscopy. I between my 6 month break. Was watching on TV and consultant told me the bkadder was lovely and clear. You can't imagine the elation I felt walking out of there. Another camera in march then bcg 13. 14. 15...
I had my radical cystectomy in may 25 and hoped all the cancer would be gone but unfortunately a CT scan on the 30th August came back as suspicious. A PET scan was ordered and then unbeknownst to me cancelled as it " didn't meet the criteria " !!!?...
Wishing all you lovely people on this forum a very happy xmas lets hope 2026 is a good one for everyone (make sure you leave santa a mince pie out and a carrot for Rudolph ) Phi xx
I had my radical cystectomy in may 25 and hoped all the cancer would be gone but unfortunately a CT scan on the 30th August came back as suspicious. A PET scan was ordered and then unbeknownst to me cancelled as it " didn't meet the criteria " !!!?...
Anyone else have pain from nephrostomy drain
Evening all With Christmas fast approaching and not getting on the forum as much as I used to just wanted to wish all a great Christmas and a healthy new year here’s to clear scans clear cameras and effective bladder installations for all best wishes...
Two year and 4 months since my Bladder was removed due to 3 stage Cancer, I got a lot of support from this Macmillan Bladder Cancer Group, I have now had just over two years clear of Cancer Its Good I can come back on here when seeking advice ...
Hi, I have put my journey in more detail in my profile. I'm new to these forums. I had a TURBT in September 2025 and a second TURBT in October. The histology came back as high grade papillary urothelial carcinoma, G3pT1. It hadn't got into the muscle...
Hi I was wondering if anyone has been in this situation and wouldn’t mind sharing their experience . My mum (67) has non muscle invasive high grade bladder cancer , she has had 1 TURBT then her 6 weeks initial BCG treatments . currently at the end...
Anxiety has raised it ugly head this week as I have my yearly scan at lunchtime tomorrow, haven't been sleeping well the last few night. No good time to have it done but just seems worse so near to Christmas. Hope you are all well. Love Lynn x
