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BCG results not so good

Anonymous123
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Hi 

I was wondering if anyone has been in this situation and wouldn’t mind sharing their experience . 

My mum (67) has non muscle invasive high grade bladder cancer , she has had 1 TURBT then  her 6 weeks initial BCG treatments . 
currently at the end of her 3 month break and scan shows more cancer than before , the cancer specialist nurse has said it still appears to be non muscle invasive but she won’t know for sure until after a biopsy . Mum has her  2nd TURBT Booked for next  week. 
has anyone had experience with this situation … how did it turn out and what further treatment was offered , is it likely to just keep coming back as fast ? 

thank you for your help 

  • I was in this state after the first series of BCG at the lower dosage level.  I agreed with hthe consultant to for a further series withe the strongest dose level to beat up the cancer.  This worked.  I have been tested for the last ten years by cystoscopic examination, and have now been cancer free for 12 years.  Just had my 89th birthday...  Best wishes for the follow-on treatment.

  • in reply to DNCBM

    Thank you so much for your reply. It really is good to hear you have had successful treatment and have been healthy and cancer free for so long. Your reply has made me feel like there is still so much that can be done for my mum , it’s always a blow when you get a scan result that is not positive news . 
    Many Happy Returns for your recent birthday 

  • in reply to Anonymous123

    Hi  Glad to have been of help.  I was able to watch the scans via my own monitor so able to see the original cancers being removed and watch most of the scheduled scans and could see that all was well.  Not often to get to watch the experts at work.

  • in reply to DNCBM

    Wow , that is quite amazing ! It is wonderful what they can do these days . 

  • in reply to DNCBM

    That’s brilliant news…happy 89th…

  • in reply to DNCBM

    I had no idea that there were different levels of BCG…

    nigel 

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