I had my radical cystectomy in may 25 and hoped all the cancer would be gone but unfortunately a CT scan on the 30th August came back as suspicious.
A PET scan was ordered and then unbeknownst to me cancelled as it " didn't meet the criteria " !!!???
I only found this out as I rang to find out why it was taking so long? In the meantime I developed horrible pain in my left hip and it was affecting the way I walked. Another PET scan was asked for and I had that on the 9th of December
Unfortunately it showed the pelvic lymph node was distended and there was cancer in the gluteal and pelvic region with some involvement of the illiac vien. So they are looking at an intense burst of radiotherapy. Hopefully just after Xmas, has anyone had this kind of radiotherapy? And what should I expect?
Im really annoyed at the hospital leaving me nearly 4months without a scan or treatment, what that will have cost me is yet to be seen .
Kerry x
