Hello. I am Gilli90 and new here. 3 weeks ago, I had a cystoscopy which revealed 3 tumours in my bladder. The attending surgeon will arrange an operation to remove them. He gave me a MacMillan card to use to explain further info to me. I haven't yet...
Hi, l'm so new to this l don't even know what to say - which isn't like me. I'm sure a time will come when l need advice, but right now, l'm just getting over the cystectomy and coming to terms with the diagnosis.
Hi there, I hope I won't be abused for what I am going to say. I know it is controversial somehow. I was diagnosed with CIS 4 years ago and had several treatments since, some of which worked other not. I refused cystectomy endless times, faced recurrence...
hi! I’m 42, recently had a nephrouterectomy after being told I had stage 3 UTUC. Biopsy came back as grade pt3, but thankfully clear margins and no spread to lymph nodes. I’m about to start adjuvent Gemcis chemo. I wondered if there is anyone else out...
Hi, I'm new here and still getting to grips with how I'm feeling about my diagnosis and next steps. I had a T.U.R.B.T 30th July 2026 and expected that to be the end of that other than a follow-up cystoscopy. When I had my follow-up with my Consultant...
It was Christmas Day when I was taken by ambulance into hospital with a serious bleed. Following tests I was then diagnosed with aggresive bladder cancer. My first reaction was to tell my four daugters but at the same time begging them not to tell my...
I was diagnosed with high grade bladder cancer, had three Turbet procedures, went through many BCG treatments but the most recent has been a nightmare, had the first of three which went as expected, the second was a different story, one week after I was...
Hello all new here I've been diagnosed with aggressive bladder cancer T4 3 tumors removed another tumor now on chest is this the end for me ? Mark
Hi, my husband is diagnosed with high risk non invasive bladder cancer and waiting for TURP and then BCG treatment. He's really struggling with the pain and waiting for the op, two weeks away. He's not sleeping, has been in and out of Leicester Hospital...
I'm lost and don't know what to do to help him. I panic over the slightest sneeze. Worried he is starting to go downhill. Chemotherapy didn't help so is now trying immunotherapy. I don't know what to do to protect him.
