Hello

Hello Aurelius  and welcome to this friendly and supportive group. We know how difficult the early days of not knowing and uncertainty can be. Don't be alarmed about the follow up TURBT, it is standard practice in most cases. It is to mop up any rogue cells and give a more accurate diagnosis. Once results are in a treatment plan will be put in place and that gives you something positive to focus on. Macmillan have put together information on bladder cancer HERE but there is always someone here to answer any questions or just to talk to. Best wishes.

I had my first Turbt on December 2024, the Chemo and Radio therapy.

6 months later I had a camera inspection which I could see the monitor and in my un professional opinion all looked pretty good and I thought that I would be discharged as I was feeling a lot better after all the treatments.

However the nurse said that I needed another resection to clear some slough.

I reluctantly agreed as I was starting to feel a lot better and leading a near normal life.Afew weeks later received another Turbt.

After 3 months feeling pretty rough  was given another camera inspection, as you know in itself is very uncomfortable. 

I was shocked when I saw the monitor the where many red sores and hanging dead skin. Much worse than after my first Turbt. I must say that at this point I was feeling quite rough and although the consultant suggested another resection, I declined and suggested scans and  camera inspections going forward.

I'm now 6 months past the suggested 3rd Turbt and feeling a lot better.

My next inspection is 3 months time.

I have insisted on regular visits to speak to the consultant and look at the latest scans, all good up to now.

My experience tells me to listen to my own body ask question and not just go along with operations which I know set me back months.

Something to think about.

Andrew 

Thank you, Rily.  I hope I'll be able to offer positive support to anyone in a similar position to myself. I'm a retired, single 68 year old female. It's the lull between appointments that gets me. I just want to move forward. I need to think like Marcus Aurelius. Amor Fati 

Thank you, Andrew. Appreciated. It's still early days for me. I'm already forming questions and looking at therapies  I may or may not require. It's important to me to be as informed as possible and to have the opportunity to discuss the same.

It’s a good plan, he was a great thinker. Itquiye routine to have a second TURBT, But I agree waiting is a killer

Don’t go mad on Google, that in itself can drive you round the bend