Hi, been a while sinse I posted on here, about 2020 I thing/
I was diagnosed with None Muscle Invaded Bladder Cancer in 2020 - I had bleeding symptoms for a while off and on, My GP referred me to Urology/
I had a flexy cystoscopy and seemed to go well, I had a small tumour and was sent for a TURBT which took away the tumour.
So everything good I though - I had a second rigid cystoscopy and they bured something away and took biopsies/
So I got a letter from consultant saying to put on BCG - MDT I think intervened and taled about a cystoscomy - I though that not right for me. I have COD,AF, formally VT -COPD - Thyroid and Kidney problems. Anyway I got BCG and went to have it and to cut a long story short, They said I was to go to respitary or oncology as I had nodules on my lung, I knew about them and supposed to be 6mm large - That was a scary episode but eventually got cleared as an immediate danger and I was backon BCG - Resilt my cancer went from CIS to Low Grade.
Next Cystoscopy I had something zapped with diothermy. and again 4 months later. I have spine problems and harder to get a line in for epidural. took a while. - My Bladder Cancer back at high grade.
To end I had my first TULA three months ago and there was soemthing not right for the lazer - So he is seeing me this coming week tuesdat and hope he can zap it away. I was told BCg had stopped working so seems TULA is it - one thing if a tumor is to large for the lazer, then what?
To my turning down the Radical Cystectomy, I was ill and about 75 as I am 80 this rear. I think that was right for me. I collapsed in hospital with VT - Don't think was right for me. So to teh Tula on Tueday to see what he does with what he found last time.
Sorry for long post, and any poor spelling. I have age related macular vision which does not help. Thank you.
Hi ern007 . Sounds like you have been through a lot in the past 5 years and now it is back again. Best of luck with your TULA next week. Let's hope it does the trick this time. Best wishes.
