Delays waiting for Turbt operation.

Hi Jane S23 . It really is frustrating waiting for appointments. The backlog and strikes have not helped. I waited nearly two months for my first TURBT and that was pre covid. It is understandable to think that things are progressing and when they use the word urgent, but several weeks should not make much difference in the great scheme of things. Best wishes.

Hi Jane, as Rily says appointments always seem to involve a wait, and we all feel anxious the cancer will get worse while we wait. The medics however generally don't see a two month wait, for example, to be of much concern. Do you have a Clinical Nurse Specialist? If so I'd be giving them a ring and describing your very understandable anxiety. My CNS has been a rock for me during my treatment and sometimes has chased up appointments too. TURBTs are usually done by a doctor from the urology team rather than my named consultant at my hospital, so you might be able to get on another list? I got my diagnosis in 2017 and still here playing piano duets (badly) with my grand daughter 5 years later. H xx 

Hi H  

It is very comforting to hear that you are doing so well. Thank you for sharing that. I'm so glad to hear you are playing those piano duets with your Grandaughter. My Grandaughters mean the world to me. They have been through a lot of trauma in their young lives. 

They have come through so much, but have become settled with us. It felt like some kind of sick joke when I was told 6 weeks ago that I had several tumours in my bladder. It turned my life upside down and my first thought was for my Grandaughters. 

I started thinking, how would we manage to continue caring for them if I'm sick and worse still, what  will happen to them in the future. I am usually such a positive person, but this has floored me. 

Over the past weeks I have calmed my thinking and have  began coming to terms with it all. I have this forum to thank for that. Listening to your stories and how you are dealing with your treatments and your own cancer journeys. And the empathy and kindness you all have for others. It is inspiring and I am so grateful to be able to have this safe place to come to and share the current turmoil in my head. 

I don't have a Cancer named nurse yet. Maybe I'll  get one once my treatment starts, or after my surgery. 

Thank you for replying. You have made me feel hopeful for the future in sharing with me how you are doing 6 years after your own diagnosis.  

May you continue to play duets with your Grandaughter for many years to come.

Much love

Jane xx

Thank you Rily. You are always so kind and understanding. I'll be ok. It all just feels a bit overwhelming and frightening at times. 

I thank God for our NHS. Even though there are delays, we would certainly be  very lost without them. 

Much love, 

Jane