Hello, I’m new here. My husband has incurable stage IV bladder cancer. This has very recently also spread into his rectum causing heavy bleeding. We are meeting with the oncologist on Tuesday for hopefully some palliative radiotherapy to stop the bleeding. He is meant to be on immunotherapy but we have had a long break. Hopefully to start again when bleeding is under control. He is actually quite well at the moment, but I cannot help but panic with every new symptom/setback. I can’t bear the thought of losing him but I know it is going to happen. I’m so so sad all of the time.
Thank you Winkers60. I know I’m spoiling our today by crying about tomorrow, but even as I type this big gif teardrops are falling. He is my lovey lovey man, he does not deserve this. I love him so much and will miss him so much.
Hi Mandymandy, I'd put a positive on your tears. He knows how much he means to you this way. Have you joined the carers' forum on here, plus there is an incurable patients' group.
And if you get hold of your local Carers' Association, you may get support from them now and many have former carers' groups for you for when he is gone. Don't forget the Macmillan helpline 8-8 7/7. Plus Samaritans don't only listen to the suicidal but anyone who needs an ear 24/7 possibly a rock in the middle of the night. And never worry about burdening Samaritans as the volunteers have really good backup so they do not suffer too much from callers' distress.
Denby
Hello Mandymandy, glad you've found this group and a place to share your fears. Thank goodness you have an oncology appointment very soon, sincerely hope they can relieve these terrifying symptoms. There are a range of treatments which appear to slow progress BC, I reckon a critical thing is that your husband is kept pain-free and comfortable, so you can make the best of this precious time together. Sending hugs Hx
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