Very deflated

Yes I suppose you have to find the strength from somewhere. At least you take away the worry of it returning all the time. Did they offer you the option of other treatment at first though? 

Yes they are not very comfy.From reading posts on here some people have them in longer than others.Roll on Friday,fingers crossed you will be much better once it’s removed.love Jane 

Hi Bumblebee, it is totally demoralising when there is a reoccurrence. My diagnosis in 2017 was Grade 2 TA1, and I have had 5 reoccurrences during my treatment. We all understand the tensions of waiting between stages of the treatment. In my experience it takes a couple of weeks to get biopsy results, which will be key to the treatment proposals from your medical team. Do you have a clinical nurse specialist? If so you could give them a ring and talk through your worries. They may be able to give you a general picture of the kinds of options applicable in your situation, and that is exactly their job, to support patients through really tough decisions and to provide information. I reckon you'll feel stronger when you get the rotten catheter out! Sending you support. Love Hx 

Thank you for your support Herothedog, I know people on here understand, I wil try and talk to the nurses when I go Friday or I might try and speak to them before. You get told such a lot of information just before and after the operation and you are not in the right head space really. It's all such a lot of waiting. I saw the Consultant on the 2 August and I have almost sort of put it behind me as its now end September. It seems quite drawn out for something so serious doesn't it. I am just feeling so worried about the future. 

Of course you are worried Bumblebee49, and not unreasonably either xx life is precious. I'm 12 years older than you and I'd still like there to be a future   Bladder cancer can be a killer but in many cases it can be treated successfully using a really wide range of strategies. Unfortunately there is a lot of waiting between treatment stages. It might feel a long time till Friday....you can always call your nurse during working hours (that's what my CNS told me). Keep us posted on how things go. x

Thanks once again for support. 

I know my mum is nearly 92 next month, I was worried I might go before her. 

Yes, because second look TURBT was clear, I was given a choice of BCG or cystectomy. At first I was hoping for to be able to have BCG, but having looked into side effects, long term outlook etc, I decided to go straight for surgery. I realise that having been able to make that choice perhaps made it easier to face than if surgery was the only option on offer. Although having to make such a decision is very difficult - often one prefers the medics to advise on the best course of action, even if it isn't a pleasant one.

I was concerned about my ability to do things for my ageing Mum. I was considering if I had BCG (treatment over several years) with 50% likelihood of still needing surgery when older & maybe not so fit to cope. We are all inclined to imagine the future when faced with serious illness. Try to focus on writing down your concerns so you know what questions you want to ask when you have your consultation. 

Rily I noticed in your profile you had muscle invasive but they did not remove your bladder?