Hi there ,
Was wondering how long, after a scheduled day surgery TURBT, it was before you were able to drive?
My problem is that I live alone so have to stay in hospital overnight to get over the anaesthetic. I will have to drive myself there on 18th Feb as I have to be there for 7am and I live 15 miles away. I have nobody who can do this for me so early and am wary of taxi firms as it will be a *big* problem if they don't turn up for some reason, and actually I am finding it very difficult to find one who will even turn out so early!! So I am going to drive myself there and leave my car in the car park for 24hrs plus (this is allowed).
I do have somebody who can collect me and take me home but obviously would need to collect my car later or drive myself home on that day, (the day after surgery) instead of my friend collecting me.
I am used to doing things alone and my car is my lifeline to normality. I drove myself 27 miles each way to Leeds and back for radiotherapy, 5 days a week for 3 weeks in 2020.
Would be interested to hear if anybody on here drove either the day after surgery, or the second day after surgery.
TIA
mole35
Hi Mole35
i would have collected you regardless of distance as I know how it feels
I contacted my oncologist last night via email and she came back saying transport is self-referring and the number is 0300 0134998. You need hospital no.
I’ll call later and let you know the outcome
Gizie cat x
Hi . Great to know you have your transport sorted. When I was having my daily radiotherapy, the ambulance car service transported me every day. A great service which I considered doing myself, but never got round to it. Best wishes.
Aww thank you never used before but first time fir everything
as it’s the 8th op now I feel like a burden as my daughter works full time and I got a stranger last time.
I guess at some stage in future I will need to decide in bladder removal every time I’m told it’s very frail won’t last much longer.
thank you
Thanks for updating brilliant news
will give that a go tomorrow. Hope it works the same up here! Will let you know.
Well done to you for persevering with this and at least you won't have to go through the same stress for any future appointments. xx
Yes fingers crossed for you I’ll be interested to know how you get on.
your so right I will use this transport from now on, no more worry and feeling a burden.
Also my oncologist related to MacMillan for a care service grant ??
I had a small grant when I was first diagnosed so I already know you only get one.
Have you applied for a grant if not it’s very easy to complete
keep in touch x
Hi . I'm afraid the number for your transport was specifically South Essex based. I had a look local to my area but doesn't seem to be anything set up for it around here. Back to plan A .. driving myself there and leaving my car in the car park.
Can I ask what the grant was for please? McMillan are very good in my experience x
Hi Mole35
aww sorry it was incorrect but your still under NHS ask your gp or hospital about their transport.
When you mr first diagnosed you can pop along to see Macmillan and complete a form with staff for a grant towards train fares, bus fares car fares or items that will improve the quality of life while you have cancer.
Don’t give up I’m sure there must be something out there for you.
Keep me posted please x
hope everything went well with you and your visit to hospital? xx Would love to hear how you are xx
Mine was last Friday (18/2/22). Drove myself there for 7 am didn't get into surgery till approx 1 pm. Asked the anaesthetist if I was OK to have a spinal anaesthetic rather than a general (info from a booklet I received). He said most of below waist ops in Scandinavia are done with spinal now. So I took the spinal way ... would do it again definitely .. good camaraderie with the surgery team ... didn't know a thing re TURBT as obviously anaesthetist gave me max sedation so I couldn't hear the conversation re the length of my toenails . Glad I gave a young trainee anaesthetist the opportunity for experience as well. x Took about 7/8 hours to get *full* feeling below waist but as I was in bed with catheter, not a problem.
Stayed in overnight as I live alone ... no problem with passing urine after catheter removed. Doctor (not surgeon) told me it didn't look invasive (I had 6/7 tumours removed) but would depend on path results .. which I get next Tuesday (1st March) fingers crossed.
Ref transport rily nothing in this area if you are mobile, which *I am*, so finished up doing it myself. Sods law it also snowed so that my lift home wasn't able to get out of home to pick me up. If anyone wants to pm me to find out how I coped with the transport hell please feel free ... our hospital trust is very very good and I have absolutely no criticism of them once you are inside the hospital. I have prior experience of this having had breast cancer in 2020.
Just a bit of light relief ... surgeon spoke to me prior surgery and said "you have 67 tumours" .... me gobsmacked !!!! me "67 ?!!! ... surgeon "No ... 6 to 7 tumours" Wow! what a relief.
Thank you for your support x
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