'Just' bladder cancer

  • 16 replies
  • 54 subscribers
  • 2549 views

Hi all,

I know I'm a newbie but you were all so amazing when I first came on this site that I wanted to do a bit of giving back to anyone who needs it.

I had my TURBT last week (cancer confirmed). My consultant had told me he was concerned about some shadowing on my liver and referred me for a CT and an MRI. Unbeknown to me he had told my husband that he was pretty convinced the cancer had spread and the scans were to see how far up it had got. He was preparing him for the worse case scenario.

How my husband has known that and still kept me positive I will never know but he did. I had the results yesterday and the consultant was wrong! Everything is clear and the bladder cancer was non invasive. BCG to follow in about a month.

Despite the cancer, I feel like I've won the lottery. The waiting sent me into a spiral of madness that I wouldn't wish on anyone. 

It is the easiest thing to say and the hardest to accept but there is always always hope. 

xxxxxx

  • Hi . Mixed emotions for you. Although bladder cancer confirmed, it is great to know all else is clear after fearing it might be worse than it is. I hope your anxiety has subsided. I never had the pleasure of BCG, but good luck with it. I hope all goes well for you. Best wishes.

    Best wishes to All,   rily.

    Community Champion Badge

    What is a Community Champion ?

  • Hi SaraO,That is great news that the cancer hasn’t spread.There are people here with non muscle invasive cancer that will be able to support you when you start treatment.Love & best wishes Jane xx

  • Hello SaraO.

    I've been there with non-invasive BC last June. I've had 9 BCGs and about to start the next 3 on Monday. I was nervous for the first one but the anticipation is worse than the reality. Just ask if there is anything you want to know; there are plenty of people here who will help.

    Best wishes,

    Peter.

  • Phew! How hard for your husband to carry that anxiety. Non invasive is what we all hope to hear xxx So very glad for you both. I'm at dose 24 in the BCG protocol and still standing Slight smile I have found my regular visits to see the Urology nurses a real bonus part of the treatment. My team are fab, funny and really supportive. Hope you find the same. x

  • Yes, your husband must have had to dig really deep to keep that to himself and not show you how anxious he must have been feeling inside. So pleased you have had the least worst outcome from what you (and he) were expecting. This awful illness has one benefit - making us realise how much we love and rely on each other, whether that’s partners, family or friends. X

  • Hi so glad you have had a positive result Blush I have just had my 3rd bcg treatment for cis ..I am quite ok with it so far ..I drink loads of water after this seems to help xx take care you'll be fine I really can't believe how quickly it's over in and out in 5mins xx

  • A bit late in replying but what fantastic news that it’s not spread. Good luck with your BCG treatment x

  • Spreading doesn't mean untreatable, but I guess the worse thing is the wait. Wishing you all the best and fingers crossed.xxx

    It doesn't matter where you go, there you are
  • Hi Sara,  I've never had BCG, but I tried a dose of MMC which my body didn't appear to like.  Recently I managed 6x Epirubicin which wasn't too bad at all.  Good luck with your treatment, we're with you here xxx

  • Oh I'm so so pleased for you

    Inanna x

    I know that I don't know