Women with bladder cancer

So glad everything is in hand now. Hope you don’t have to wait too long and get everything sorted before your holiday.

I love the idea of a holiday as a reward .. I might have finally found an excuse to actually have a break.

Take care xx

I too went the gynae route , in for fast track tests for post menopausal bleeding and a growth in my bladder was spotted on ultrasound.

so then referral over to urology. 

I don’t know grade yet but feel very lucky it was found this way as I have a recent diagnosis of MS and my urology symptoms had been put down totally to that. I feel it would have been a long time before anything else was considered otherwise.

it certainly seems GPs need to be more proactive over women’s water work problems..and the possibility of bladder cancer as a whole in any gender and as you say not just in the elderly population. 

Hi nowthis

Even though it is not what we wanted, I know that this bladder cancer would not have been found unless I had had the ovarian cyst and then the retention causing the gynae to do a cystoscopy.  So I agree with you in what you say and really sorry to hear about the MS alongside everything else. 

The reason I have waited to see this particular surgeon is that I saw him privately for one session just to suss out if he was female orientated.  The original one just seemed into prostates and male bladder stuff and I felt just incidental to his main interest.  This guy took the whole female package together and was very respectful !  Not just looking at the bladder but at the remaining female bits and the bowel as well so he was the one for me...

I have a new date for the abandoned appointment of yesterday [as you may have been reading], and it will definitely be 24th April but more likely to be next week at the end of another list.  A lot of apologies but it seems there hadn't been a mistake, there was actually an emergency of some sort that he had to deal with [whether personal or professional I don't know] but they had to tell us something not quite true.  Ultra-strange.

I hope you get results soon so that you know the way forward. MaryQ xx

Hi MaryQ,

So sorry you had your procedure cancelled at the last minute, awful when you get geared up for something. At least you now have another date.

I’m still not feeling great, I spoke to my Urology nurse on Tuesday about all the blood I was passing and she said because I had been vomiting and retching for so long which contracts all your abdominal muscles it can disturb things in the bladder, hence all the blood and clots. Thankfully there is no visible blood now. Still convinced that whatever they gave me whilst I was under anaesthetic has caused all these problems.

Blanket, sorry not really been in the loop these last few days but great that you had a fairly good experience this time.

Best wishes everyone 

Luce x

Hi MaryQ

glad you have your new date, the waiting for anything is always the worst.

definitely sounds more like he had a personal emergency for them to not really know on the day and be so vague about things.

hope your appointment goes smoothly and is as soon as possible.

your doctor sounds great.

I am having a night mare at the moment, my husband is having scans as he had a small bleed on the brain which is thought to possibly be due to a secondary tumour, so they’re checking if there is a primary somewhere . He had a grade 3 brain tumour 18 yrs ago. So at the moment we’re both playing the waiting game.

as for my MS ... avoid stress the ms nurse said

... now this

xx

What a rotten time you are having. Really hoping things get better for you and your husband soon. Troubles do feel like buses...all come along at once. But often after months of dark skies you turn the corner and the sun comes out again. Sending love. Xx

So true Herothedog, highs & lows eh.

Hope everyone's feeling better soon xxx

Got a UTI, thought everything was going soooo well, not a cloud in the weeee, not an ache, or pain, or any soreness.  Was feeling it at the weekend, but put it down to having an early pint for rily, it does tend to aggravate the bladder.  Tried to see my usual nurse yesterday but she's left!  Reception didn't appear to know what to do, so I told them I'd do a sample & one of the other nurses could test it.  I hadn't heard anything by afternoon so I called & they'd sent it off to hospital, where it would probably have got lost in the system.  So I asked to speak to the a Dr who could prescribe antibiotics, & he did.  God it was exhausting 

Anyway how's everyone doing today?  

Sorry to hear that Blanket.

why does everything have to be a struggle ?  you’d think all surgery’s would have a better & simpler system in place for dealing with UTIs by now.

Hope you feel better soon. x

Hi Blanket

Sorry to hear about uti...so annoying and draining and I hope you feel better soon.   I seem to have got a system in place by default!  I have my own dipsitcks and know how to read them and also a couple of courses of antibx in reserve.  But I do take a sample in to GP before I start as well so that it is on the system.  

Fortunately I only seem to have got them when self-catheterising and post Uro-dynamics...but all the organisation is such a struggle as nowthis says.

I am in a kind of limbo at the moment waiting for next week [trying to ignore it] and made easier by the fact that it is warmer and the sun shining.  A bit of normal life in the middle of the rest.

I hope others are coping with stuff and not too distressed today.

Hugs all round xx