Women with bladder cancer

Gotta agree with you there Herothedog!  I went to Lanka & did that too.  Enjoy!  X

Really getting anxious now as have had increasing discomfort/soreness for a week...no sign of uti.  I have had to take today one hour at a time as I have that strange detached feeling...longing for bedtime!  My cystoscopy is at 1pm and I can't wait 'til it's this time tomorrow whichever way it goes.

I hope you two are feeling a bit better and that the bleeding etc. has settled down.

Thanks for being on here. X

Roll on this time tomorrow for you Mary, I’m with you here!

I’m feeling good thanks, hope Luce is too.

I’ll be thinking of you xxx

Good luck Mary, it’ll feel better when it’s over. In fact I always experience a bit of euphoria when the bugger has been removed and always less anxious after a spell in my local Urology Ward where I now feel like I am staying with friends. xxx

Same here Herothedog, I could stay up & party all night, not that I usually do this

Soon be done Mare xxx

Hi everyone...you will never guess what!  I went all keyed up for it and we were in our gowns and waiting and after about an hour a nurse came and said he had been held up.  Then an hour later another nurse came, very apologetic, and said they had just found out that my surgeon was on Annual Leave today!!!!!  They did say that they were searching for a registrar to do it but weren't too hopeful...but I had been waiting for him particularly and no way was I going to have someone I didn't know doing it.  I was meant to have this in February.

It is crazy and if I didn't have discomfort and aching pelvis I would just bury my head in the sand.  But I rang his secretary and she isn't working until Friday but I will certainly ring her and see just what is going on. 

I am seeing my own GP on Tuesday so I will see what she has to say.

What a performance! xxx

Aaaw Mary I’m sorry this happened to you.   It’s always the way though eh, the person you want is off when you really need to speak to them.  Hopefully the secretary will sort you out on Friday. X 

That’s just rotten for you Mary. I think I would contact Pals at my hospital and describe the distress it has caused. They are really supportive and will help with making contact with your consultant. Although I am 100% behind our amazing NHS services there are sometimes glitches and I think it is useful for these to be noted so others don’t go through what you have. Sending big love, hope you get  sorted very very soon. xxxx

Thanks Herothedog. As soon as I could this morning after 8am I rang the urology coordinator and told her what had happened and she was great.  Got in touch with Waiting Lists and rang me back .  The guy who is in charge of my surgeon's lists has it all in hand now and is going to ring me with alternative, thank goodness.

Just a bit more waiting but strangely I feel kind of 'whatever' about it now as I can't stay at that level of stress any more. Something must have kicked in to let me feel like this which is very comforting.  I hope it is well before my holiday in May which was made as a kind of treat for afterwards.

I hope Luce and Blanket feeling ok today. xxx 

Good news Mary. Glad you feel calmer, you need all your energy to stay healthy. (Not that I don’t get very anxious myself as a flexi looms, it’s in the nature of things!)  Yes I too am thinking of Luce and Blanket. Hopefully they will message to say all is well. Anyway Blanket is getting the drinks in for us all on Monday after Rily’s flexi :) xxxx