Hi I was recently diagnosed with bladder cancer with one tumour blocking my ureter. I had a TURBT a few months ago and had a stent fitted. My path results came back superficial. However the one in my ureter was not removed and I was told it had spread...
I have just received the best news ever this morning!! After 3 TURBT procedures and going from grade 1 non invasive bladder cancer to grade 3 non invasive cancer and 6 BCG treatments, I have been given the All Clear!! My Bladder is extremely inflamed...
Hi all I know I've been away from the group for a while, we are moving house so every spare moment of my life is spent packing and sorting. My son has moved out and is having a baby so it's been busy busy. Anyway.....a week before my 12 month Cystoscopy...
Hi all It's a couple of weeks since my last mitomycin treatment. Six weeks one session per week at the day procedure unit. Can't praise the staff there enough. I was told that they were a "nurse led team" which apparently means that everything is controlled...
Hello, I have been told I am eligible for a partial cystectomy followed by chemo radiotherapy as my 3cm tumour was removed from dome of bladder (t2 mibc).Or I can have another turbt, again with chemo radiotherapy after. Of course I am being advised that...
Had my follow up cystocopy this morning and it was clear. Well uncomfortable but Well relieved. All that showed up was a bit of red where my tumour had been removed 10 nweeks ago. I feel very lucky at the moment but i am also aware that things can turn...
I had the above investigations done 3 weeks ago I've just had consultation letter come through to discuss results it's not till 4th July which will be 6 weeks . I'm feeling hopeful as surely if bad news would see me sooner or am I being a bit silly as...
Hi all hope you are well. Would bods who have had their bladder removed be OK speaking about any mild to extreme mid to long terms problems they face please? Saw the Hannah Fry doc and she spoke getting lymphodemia following radical surgery for cervical...
Hello all I’m now 5 weeks post operative from radical cystectomy and yesterday started to experience sharp pains in my groin which feel like little electric shocks. I’m still very numb around my incision scar but these sharp pains are getting through...
I was scheduled to start Mitromycin treatment a couple of weeks ago. I duly turned up with an empty bladder as advised by my Macmillan nurse. She placed the catheter in and was expecting to find some urine there. Nothing!! She tried again but all we got...
