Anyone familiar with a partial cystectomy?

Hi ojblossom. Partial cystectomy does not come up here very often. I didn't quite go that far., but they had to dig deep at my first TURBT and I was in hospital for four days. Had a follow up TURBT and then on to chemo followed by chemoradiotherapy. Didn't really have any problems with the treatment. My oncologist disputes the gold standard tag of removal for MIBC. I hope all goes well. Best wishes.

Thanks for your response, my first turbt was similar, home on day 3 with catheter for 5 days.  With your treatment did they ever mention taking lymphnode samples, they say they would do that with a partial cystectomy?  The more I read about it not being commonly used the more anxious I feel! 

Hi oj. My diagnosis was T3pG3N0. The N0 meaning no sign of lymph node involvement. I had a follow up TURBT which was a lot easier than he first. In and out in a few hours. Then various MRI and CT scans and urine cytology. I then met my oncologist who offered me bladder preservation. Best wishes.

Thanks rily, excellent to hear despite t3 you have been able to preserve bladder. I have so many questions for when I next meet with urologist as I haven't managed to hear from anyone who has had a partial cystectomy. 

Hi ojblossom,Welcome to the group.I haven’t come across anyone having had a partial cystectomy.I wonder whether it’s to do with the position of your tumour ? I hope your urologist will be able to answer all your questions.Best wishes for a speedy recovery from your TURBT.Jane

Hi Jane, yes, tumour location was in the dome of bladder hence I'm  "lucky" that a partial can be done. I'm just so anxious about the procedure as it seems its not often done. Sue.

Hi Sue,I think I’d be anxious too.We have to put our faith in the urologists/surgeons.Perhaps you will be able to keep your bladder for longer.I suppose it will depend on what your specialist advises.Good luck.Best wishes Jane